Has anyone had a rems bone scan or tbs bone scan?

Posted by jimr33 @jimr33, Nov 11, 2024

I have poor dexa bone scan results, but have heard that rems scans and tbs (trabecular) bone scores can give you a better overall bone health picture. But both, especially rems are pretty new and I wonder if anyone has been able to have one and if their insurance accepts?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for harrington50 @harrington50

Periodic scans and lab work are the only way that we have to gauge our progress (or regression). I have been scanned for osteopenia/osteoporosis every two years for over 20 years now, and these scans have been helpful for me to manage those conditions. Unfortunately I had a family crisis that took my attention away from myself for about 3 years and my conditioned worsened, resulting in my first compression fracture. So, I disagree, my "diagnosis" was not the result of the fracture, in fact, for years, the scans provided the "diagnostic measurement" that I needed to prevent fractures. I have always controlled my conditions prior to any scans or lab work. Yes, I understand equipment calibrations and other variables influence the results, but I'm not looking for precise diagnostics but rather evidence of progression (or regression) over time related to therapeutic methods employed during those intervals.

Jump to this post

We don’t disagree - my comments were about singular tests compared to each other and the problems inherent to that— as I outlined. Overtime, and with many tests we ascertain more truth in the matter. I think you misinterpreted possibly - your diagnosis of compression fractures is a diagnosis, as evidenced by the compression fracture(s) you were diagnosed with.

REPLY

Sharing a great podcast episode that explains REMS v DEXA and many other aspects of OP treatment.

On Spotify;
The Evolution Lab
2/27/25 Episode
Paul Magee - Bone Density, Strength, Fractures, Echolight & DEXA

REPLY
Profile picture for dorsetgirl65 @dorsetgirl65

On the Mayo osteoporosis website someone said they were getting the REMS in Vancouver, Canada. I live in Oregon but my son lives just across the border in WA. so it was a win win to visit him and get a REMS scan. At the time I made the appointment I could not find a REMS scan in Oregon. BUT someone on this site found a REMS scan in Oregon at Osteostrong. I looked it up and Yes i could have got it here but had already made an appointment in Canada and was getting to visit my son. I will get a REMS every 6 month, here in Oregon at Osteostrong where ever the machine is, while I Figure out my plan of attack on Osteoporosis. I don't want to find myself with far worse numbers as a surprise like finding out I had this disease in the first place. I like that i can monitor the progress of the disease myself with out having to wait the 1-2 years to get a DEXA.

Jump to this post

Where in Oregon?

REPLY
Profile picture for jenjarv10 @jenjarv10

Where in Oregon?

Jump to this post

I had my REMS done one year ago in Oregon through Osteostrong. It was very confusing because it showed I was normal in my spine and osteopenia in my hips. I have 6 consecutive years of Dexa Scans showing Osteoporosis in my spine and osteopenia in my hips. I am stable with my scores during this time. I had another Dexa Scan and (new to me) a TBS score done April 2025. Same Dexa Scan scores, but the TBS showed "1.185, which is consistent with degraded architecture". This information led me to work with an Endocrinologist who has been a positive experience to work with. I feel like I have someone with the knowledge and supports me to address the osteoporosis.
I do not consider the REMS to be valid in my situation and do not rely on this.

REPLY
Profile picture for marynh @marynh

I had my REMS done one year ago in Oregon through Osteostrong. It was very confusing because it showed I was normal in my spine and osteopenia in my hips. I have 6 consecutive years of Dexa Scans showing Osteoporosis in my spine and osteopenia in my hips. I am stable with my scores during this time. I had another Dexa Scan and (new to me) a TBS score done April 2025. Same Dexa Scan scores, but the TBS showed "1.185, which is consistent with degraded architecture". This information led me to work with an Endocrinologist who has been a positive experience to work with. I feel like I have someone with the knowledge and supports me to address the osteoporosis.
I do not consider the REMS to be valid in my situation and do not rely on this.

Jump to this post

Did you think Osteostrong helped your bone density? What endocrinologist did you see? I live in Oregon too.

REPLY
Profile picture for jenjarv10 @jenjarv10

Did you think Osteostrong helped your bone density? What endocrinologist did you see? I live in Oregon too.

Jump to this post

Hello, I was doing so many things to (hopefully) strengthen my bones at the same time, that I could not determine if Osteostrong helped me or not. I think I attended for five years.
I am on a medical hold with Osteostrong because I had surgery to correct a vaginal prolapse.
I was referred to Oregon Medical Group for the Endocrinologist.

REPLY
Profile picture for marynh @marynh

Hello, I was doing so many things to (hopefully) strengthen my bones at the same time, that I could not determine if Osteostrong helped me or not. I think I attended for five years.
I am on a medical hold with Osteostrong because I had surgery to correct a vaginal prolapse.
I was referred to Oregon Medical Group for the Endocrinologist.

Jump to this post

Thank you!

REPLY
Profile picture for marynh @marynh

I had my REMS done one year ago in Oregon through Osteostrong. It was very confusing because it showed I was normal in my spine and osteopenia in my hips. I have 6 consecutive years of Dexa Scans showing Osteoporosis in my spine and osteopenia in my hips. I am stable with my scores during this time. I had another Dexa Scan and (new to me) a TBS score done April 2025. Same Dexa Scan scores, but the TBS showed "1.185, which is consistent with degraded architecture". This information led me to work with an Endocrinologist who has been a positive experience to work with. I feel like I have someone with the knowledge and supports me to address the osteoporosis.
I do not consider the REMS to be valid in my situation and do not rely on this.

Jump to this post

Did you ever consider that maybe the Dexa is the unreliable test?

REPLY
Profile picture for maryannb5 @maryannb5

Did you ever consider that maybe the Dexa is the unreliable test?

Jump to this post

That’s an interesting thought. My two scans were vastly different and having had 5 annual dexa scans (same hospital, same machine) one with TBS, I believe the unreliable one was the REMS. I’ll know more when this year’s scan takes place.

REPLY
Profile picture for maryannb5 @maryannb5

Did you ever consider that maybe the Dexa is the unreliable test?

Jump to this post

I really wanted the REMS to be correct as it was such a good report. However, that was why I went to a different facility in April 2025 to include the TBS score with my Dexa Scan. I was very interested to see which way the TBS would report, but sadly, also indicated degraded architecture.

REPLY
Please sign in or register to post a reply.