I’ve had Crohn’s since 1985. I had a resection then with ileocecal valve removal. It’s been a wild ride lately. Through my colonoscopy last year, I found out I had an active flare in my small intestine. No symptoms though. There was evidence of scarring from another unknown flare. No fevers or bleeding. I personally think the scarring was from C-Diff that stuck around for close to a year. It was evil and the worst part happened in October when the hurricane came through and knocked out our power for close to a week.
For my Crohn’s flare, I started on Skyrizi in February and three days later, C-Diff was back or maybe it never left.
I finished treatment for that in May while continuing my monthly infusions of Skyrizi. I’m getting ready to take my third maintenance dose of Skrizi. I’m praying that it helps me feel better.

This is just a snippet of my story. If you hung in to the end, you did good!

Still don't know if I have it, or Crohn's, they said "more investigation required". Still having a variety of issues now every day. However, I do have been diagnosed malrotated intestines, so maybe that's the issue, or maybe it's both. Not sure if I'll be of any use to this group.

@lisalucier Hi. I always research medical issues on the Mayo Clinic site. My mom has been suffering an ulcerative colitis flare up for 5 months and is feeling worn out and hopeless. She can’t take more steroids because they increase the pressure in her eyes. Doctor put her on Entyvio and it sent her to the hospital. Now they want to try Skyrizi. Anybody have experience with that or any other advice?

@lisalucier
Recently diagnosed even though I’ve had this problem for years. Now, I’m taking Linzess 145. So far it’s doing nothing. I’m also getting conflicting information from my primary care provider and nurse practitioners at the gastrointestinal clinic.