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Wow! This is interesting because I also deal with my heartrate getting super high, but oddly I go between bradycardia and tachycardia. Dr put me on beta blocker to see if it helps and so far my HR hasn't gotten abo e 117, but now Im dropping to 43. Just had another echo recently and wor holter monitor again prior to meds. During the times that I pushed the buttons it showed tachycardia with artifact, but I know its not artifact...its whatever is happening to my heart when I get these weird arrhythmia. Im finally being referred to neurologist and have an appointment in October. Hoping that the puzzle can find ally be put together. Im so tired....High HR feels like I've run a marathon, slow HR just makes me want to sleep. I desperately just want to feel good again and live life to the fullest. It has really been affecting my mental health at this point. Tired of Doctors saying "sorry, there's no cure and nothing more we can do".
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I get the whole needing to know what's wrong and having an acknowledgement by a doctor that yes there is something going on. And sometimes the answers come and sometimes we don't.
With MiTo there as so many co morbid with so many symptoms that can match different things. I sleep a lot and am always exhausted, my sleep is rarely fulfilling, and I also have exercise intolerance (which now with hindsight makes so much sense as no matter what sport or exercise I wanted to do, I was just a complete failure at it, so now I know why). If I do anything I am literally asleep for days after and if I know I have an appointment coming up, I have to spread out my preparation and take it easy beforehand or otherwise I am exhausted before I even start.
That is quite the conundrum with your heart rates, while yes it is good that the tachycardia has bettered but the bradycardia is a little unsettling especially if you are veering from one to the other. I hope your neurologist is of help, mine isn't particularly good, but I just think she doesn't know what to do with me, but my metabolic consultant is very good, it's just I have to travel over 200kms from my home in County Cork to Dublin (which is a small trip if you are American but annoying for us), I am by the sea so am at a very southernly part of both the county and country.
Please reply to this any time and please let me know how you get on with your neurologist, I will be thinking of you. My name is Michelle by the way.