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DiscussionHow to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
Replies to "Thanks so much lindapc, I am in awe of you getting down to 1 mg!! I..."
Hello again @jules11 I have to be very pro-active with this myself, my Doctor has only taken 3 blood tests since I first had this, 1 to diagnose which showed a CPR of 49, one 1 month later which was 5 and then pretty much have been told to reduce every month or less if I felt okay, so only having visits maybe every 3 months for repeat script. I am going on holiday Saturday and will be seeing Doctor on my return, I will ask then for a blood test to see what my levels are. My personal feeling is that if I still have symptoms this condition is still hanging in there somewhere and just waiting to rear its ugly head, that's why I am concerned about dropping that last 1mg. Doctor told me when I asked if I should cut down to half or every alternate day - just stop. I really don't find it that helpful and get more from this group. My partner has just told me that there is another drug not sure if anyone has tried this but evidently good results. Etanercept is the name of the drug or I think it is called Enbrel here in New Zealand. Would be interested if anyone has tried this.