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Has anyone stopped taking camzyos? I have stopped and feel very sick.
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 1 6:39pm | Replies (48)Comment receiving replies
Thank you for your input. It helps to hear other people’s stories and that you can relate to it. I wish you well, it’s typical for confusion and anxiety. I am sure it will get better. Two open hearts within 14 months is a lot. Keep going will get better. I keep telling myself that there is light at the end of tunnel. Feels better just discussing it. An we are not along. Prayers
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I was only diagnosed 7 years ago. It is such a terrible disease that really no friends or family understand. The camzyos and the amt of water, and dizziness and fear, were unbearable for me.