Who has metastatic duodenal cancer (urothelial spread and more)?

Posted by enelram12 @enelram12, Jun 28 7:04pm

My father has had cancer knowingly since October 24, started in the duodenum and urolethil spread. Was in the hospital for two months. They took two weeks to find the cancer. He could not eat was on iv, feeding tubes,etc. the oncologist resection Ed his stomach to his intestines and he was able to eat again. While being on a host of medications for stomach pain,and enzymes and the out in a jg tube for drainage. He went home in December. We have been doing home palliative care. The cancer has now spread into the liver and pancreas and they will try to put a stent to aid with the pain. He has been on this journey for 9 months. He can still toilet and eat and walk for about 15 minutes. He has had so many side effects and still wants to fight for more time .

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enelram12 | @enelram12 | Jul 14 6:34am

In reply to @colleenyoung "@enelram12, I am just catching up with this conversation. How is your dad doing? How are..." + (show)

Hello. Hes just off to the hospital for blood work and to get the biliary drain tube fixed or hopefully stented instead. He’s gone downhill. Falling twice. Nurse was coming everyday. He is no longer mobile, as of Saturday, so my sisters and I lift him to the wheel chair. Cancer has reached his lungs now. His calorie intake is less than it was, so we are gently discussing hospice with him and his options as he is fully coherent. It is absolutely all focused on his comfort. With three of us sisters, we all have slightly different views on things, we love each other but man this tests all of our emotions. My father is stubborn, lol he finally played for us to hire a grass cutter, as dad was so independent, but we are tired to and exhausted over the last 9 months. I could go on and on. Grateful for you thank you.

enelram12 | @enelram12 | Jul 14 6:46am

Hello. The stent is leaking and not fully working. He has been immobile, so we lift him to the wheelchair, as if the last three days, the palliative team provided. He does not want to go to the hospital, he opted to take the ambulance this morning to the hospital, as he was suppose to go for blood work today, stent replacement tommorow and doc in Wednesday, my sisters and I can no longer continuously lift him. So we are at a crossroads right now. The cancer has spread to the lungs as well. Dehydration is always an issue. He has fallen twice at home. The nurse comes everyday now. He finally agreed to let us hire someone to cut the grass, as he has been fiercely independent for 83 years. The three of us are struggling to keep up. Being as the focus is his comfort, and one fix seems to lead to another complication lately, it strains all
Of our emotions, and view points between the three sisters, we love each other but man this is difficult after 9 months, trying to take care of housekeeping and the pool, not meaning to sound ungrateful…. But it’s tough. So we shall see what the day brings .
Grateful for you asking today .

jriggs0811 | @jriggs0811 | Jul 20 11:39am

Thank you for sharing your journey with your Dear Independent Dad and your two sisters ❤️. I am the oldest of 3 sisters, and we had similar challenges with each of our parents, 3 years apart! Now, my dear husband of 47 years was diagnosed with aggressive urothelial carcinoma, and our journey takes a turn. You are an inspiration, my dear friend across the miles. Sending lots of hugs your way.

enelram12 | @enelram12 | Jul 23 12:40pm

In reply to @jriggs0811 "Thank you for sharing your journey with your Dear Independent Dad and your two sisters ❤️...." + (show)

Oh I’m sorry. We are near the end, he’s stopped eating mostly, my sister entices him to eat even when he says no, it’s hard to watch, but we stay respectful, or trying. We have Psw one morning and night, and nurse daily. The palliative doctor came to the home and offered a hospital bed and if he wanted to go to hospice, he wanted to stay home at this point, he’s not sure what hospice is, he needs time to think things through. He whispers only, we still carry him with the wheelchair to the toilet respectfully. All medications are to be stopped as per doctors EXCEPT pain medication. He can eat if he wants when he wants and pedialyte and ensure fluids are always at his side. They also suggested a port for pain medication. And to be honest my dad does not always tell the truth when he’s in pain, so it’s all frustrating.

omarcamacho74 | @omarcamacho74 | Aug 26 3:56pm

Hola, tú mamá es una gran guerrera, yo tengo cáncer de páncreas hace dos años que me lo detectaron, soy nuevo aquí no se cómo poder directamente compartir mi experiencia.

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