Well, lots of good points by the forum.
First and foremost, stay on top of your health. See your doctor, have those labs. For those who have served in the Army it's akin to:
PMCS - Preventative Maintenance Checks and Services
Q-Services (Quarterly)
S- Services (Semi-Annual)
This identifies issues early only so potentially instead of having to replace a transmission, you just do transmission flushes. Same principles with your car.
There is no "good" cancer. That's an oxymoron.
If you are unfortunate enough to join this club then start learning the terms and definitions. Hard to have an intelligent conversation if you don't know what an ARI is...OS, PFS, RPFS, PSADT, PSAV...
Always have a multi-disciplinary team. Besides radiologist, urologist, oncologist, have a cardiologist...,
Become familiar with where to find information - guidelines such as NCCN, AUA and patient centered websites such as PCF, PCRI
Have "rules" for you and your medical team. I've posted them before.
Understand that despite the science behind the guidelines for treatment, they are population based and lag behind data emerging into mainstream clinical practice from clinical trials. The "art" is applying the science to your particular clinical data.
There are a plethora of choices when deciding on treatment. This can lead to paralysis by analysis. There is no single "right" treatment decisions, there a quite a few "good" ones.
If you do not understand the basics of statistics, get busy...things like Bell Curve, Standard Deviation, Sampling Size, Confidence Intervals, Mean, Mode, Average...
Do not underestimate the power of things like attitude, exercise....
If you are comfortable, look up the shared decision making model for you and your medical team.
If you are using a shared decision model with your medical team and somebody is dismissing your I out to the decision., well, firing them is an option.
Finally, statistics....statistically you stand a good chance of being around for awhile, you may have to live with prostate cancer and its side effects but you can live a lot with it!!
Understand the difference between research and what I call literature search and reviews. Truth be told, most of us do the latter, me included!
There are more but I'll stop here.
Kevin
Hi Kevin, looking at your timeline graphic and I’m curious about what made them add Taxotere in Jan 2017 when they also started you on Lupron. Did you ask for that? I asked if I could do chemo after radiation, and I was told “no” because I don’t have a high tumor burden. I plan on discussing this again at my next appt. Radiation planned for late September - November.
Thanks!