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Newly diagnosed with AML (FTL3 TKD)
Blood Cancers & Disorders | Last Active: Sep 23 12:39pm | Replies (49)Comment receiving replies
Hi @loribmt
Hope you’re keeping well!
Here’s an update so far FTL3 TKD are undetectable. I have pesky inversion 16 that just keeps coming back. I was close to remission and developed a 5cm mass in my chest so I had to stop cancer treatment and only take antibiotics. After that I got sepsis from a picc line and have only just now had negative blood cultures.
I’m starting chemo conditioning on 28th of Aug for 10 days and my stem cell transplant is on 9th Sep. the only thing I’m very worried about is that when I stopped the cancer treatment my MRD showed 12% of cancer (about 2 weeks ago) now I’m going into a stem cell treatment with active cells if they don’t get eliminated with the chemo beforehand. This is my 2nd time going through this nightmare journey and I don’t want to relapse after transplant. Any suggestions or advice you have would be greatly appreciated!
Replies to "Hi @loribmt Hope you’re keeping well! Here’s an update so far FTL3 TKD are undetectable. I..."
@jamielynn777 How are you doing? Getting ready for the SCT on the 9th?
Ginger
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Nothing about AML treatment is straight forward, right?! Sorry to hear that you have the additional worries about 12% cancer still present going into transplant. Conditioning chemo is very powerful, so hopefully it will kill all the remaining cancer.
Once your new immune system starts working, it should continue to seek out and kill cancer cells.
I went into my transplant without a trace of cancer, but getting to that point was a rough journey for me. I had to go through induction chemo twice.
I wish you all the best as you start your transplant journey tomorrow! Praying that the transplant will work well and bring healing to your body!