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@sallygosse

Hi Barry
Mine started 2 years ago the same way. I was the most active woman i knew...travelling solo to India and Kenya...had my own business..building rock walls and gardens..etc etc. Then such a sudden screatching halt! The pain from head to toe, debilitating fatigue, i couldnt even bend over. 20 mg of prednisone and voila! I was back to myslf. I have been trying to reduce ever since and am now at 7mg. Today i am in pain but will take a T3 and that will clear up the day without upping the pred. I dont know that i will ever get completely off it, but i take comfort in knowing the side effects under about 9mg are negligible. I tòo have pain in my fingers and cant wear rings anymore because of the swelling. But
.....i give thanks everyday that it is not worse...and that it is not life threatening. Good luck with your reduction! I hope one day to be off it too!

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Replies to "Hi Barry Mine started 2 years ago the same way. I was the most active woman..."

that makes sense why I struggle to take my rings off/on. Wondered why my finger seemed so much bigger now. I guess that could be from prednisone, not sure. I am down to 4 MG finally from 20 MG and find a bit more stiffness in the morning and hoping it will settle down by a months time so I can try to lower prednisone again. Wonder if remission means there is no pain at all or if you still feel slight stiffness. Very grateful though as there could be much worse we could be dealing with.