Does anyone have lymphoma and no measles immunity?

I had a diagnosis of Primary Cutaneous Extra-nodal Marginal Zone lymphoma B-Cell non-hodkins cancer which totally blew my mind. It was out of the blue. Totally unexpected. I had a small red dot which appeared on my forehead. It didn’t go away? I was mystified. I thought it’s a pimple. It began to very slowly grow. In 2022 it was a small red nodule (like a spot but rock hard) with a target 🎯 like circle ⭕️ around it. I was told by 3 Consultants it was a basal cell carcinoma and nothing whatsoever to worry about. I asked for MOHs Surgery which they refused me as they said it was completely unnecessary. And they delayed 9 months approximately before they excised it. They actually asked me if I would agree to a nurse excising it and I refused this. Then 4 months after it was excised they telephoned to call me back into the hospital and informed me the biopsy results had come back and it was not a basal cell carcinoma at all!! It was a Primary cutaneous extra-nodal marginal zone B-Cell lymphoma non-Hodgins cancer. I too believe it was the Covid-19 Pfizer shots which kicked off my B-Cell symptoms. I had NO SYMPTOMS beforehand. My symptoms were tiredness/exhaustion and the visible small tumour on my forehead. Last year I stopped boosters for Covid-19, and flu shots. I will not be going for the shingles vaccine either. I have stopped all vaccines. I have been told it was indolent? I’m praying very hard. I’ve had nothing since. I am on watch and wait and blood tests. I have had no x-rays or scans. Was yours a Primary cutaneous extra-nodal marginal zone B-Cell lymphoma non-hodkins cancer?

Hello, @steiner. My diagnosis for the slow-growing form of lymphoma is "nodular marginal zone lymphoma." It's different because it initially forms inside the lymphatic system. [I had to look up the difference.😉] But, it morphed in my stomach lining into DLBCL (Diffused Large B Cell Lymphoma), which is very aggressive.

I'm glad I had that vaccine. My body's reaction caused me to call my primary right away. The DLBCL could have continued to go unchecked, and my treatment and/or outcome could have been a lot worse.

I am still very frightened

I’m fearful about putting anything unknown into my blood stream since the incredibly “unexpected” diagnosis of primary cutaneous extra-nodal B-Cell lymphoma non-hodgins cancer diagnosis. So I’m thinking boost my immune system naturally with diet, exercise, sleep and keep stress levels as low as I possibly can under circumstances of my stressful profession. What type of immune protection were you thinking of? Thank you

Hello @steiner,
I hear you about being frightened. I didn't mean to introduce anything else for you to ponder over.😉

It was shocking for me to get a cancer diagnosis. I did all the "right" things: I was vegan, exercised regularly, and mainly got proper amounts of sleep. My "why me" moment never happened. It was more of a "Huh. What?!?" moment.😂😂 But that doesn't mean I haven't experienced all kinds of rollercoaster emotional moments pre, during, and post treatment.

My medical system provides counselors. Even though I'm in a Watch and Wait protocol, I value that I can still consult with him for emotional support. I also leaned heavily on the Leukemia and Lymphoma Society (Recently renamed Blood Cancer United). They have an 800 number that patients can call to discuss next steps, other concerns, or anxious moments. https://bloodcancerunited.org/

Although I feel concerned sometimes, I don't think about cancer every day. Knowing I have a very competent team in place helps. And that lets me concentrate on creating a richer life. It took me a few months after my recurrence to get to that place emotionally. Anxiety is normal, and we all have a right to feel what we feel.

I feel great and have taken up biking as a hobby. I just learned to ride last year and am getting better every day. I've set a goal of riding across town, but I need more practice navigating the streets.😂😂

I'll come back to your question about diagnosis in a follow-up reply. I don't want this response to be too long.☺

At this point, I don't know. I have an appointment with my hematologist/oncologist on Sept 4th & I will ask her about this & post her response.