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Severe stomach pain

Posted by tyjacob @tyjacob, Sep 18, 2011

I have had several years of pain in my stomach and not sure what to do. i have had ibs, acid reflux, gastritis, internal hemorrhoids. A few months ago I had a slighly irregular Z line, mildly erythematous found in the antrum and nodules were found in the ascendingn colon.
I have taken xypaxin for pain but it no longer helps. I throw up daily and have diarrhea, I have headaches. My stomach cramps so badly that I can go anywhere because of the pain. What should I do?

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anitannapa | @anitannapa | Aug 16 5:37pm
In reply to @vickyl "She was sent to see a doctor who specialises in Sphincter of Oddi Dysfunction, which they..." + (show)
Profile picture for vickyl @vickyl

She was sent to see a doctor who specialises in Sphincter of Oddi Dysfunction, which they thought it might be but just got told it’s not that so she’s getting very frustrated, now. There going to send her to a chronic pain doctor to manage the pain, but that won’t help with the symptoms. We feel like there just saying we’re deal with the pain and we’re being brushed off as they don’t know what it is, we have to keep fighting to been seen again
Been told it’s not crones/colitius , ibs , diverticulitis as these are in the family. They even phoned her and told her she had cancer at one point and then changed there mind. I’m just hoping someone might see my post and suggest something to try and we’re at a loss, and it’s alfull to see how she’s deteriorated
I do appreciate your suggestions
Were in Somerset uk I’m willing to travel anywhere in uk if it’s help

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Hi, There is a Cleveland Clinic center in London. They are considered as good as Mayo and some may even say better. Good luck.

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steelerfanjoe | @steelerfanjoe | Aug 17 6:12pm
In reply to @vickyl "We keep trying everything, we got sent to see a doctor who specialises in Sphincter of..." + (show)
Profile picture for vickyl @vickyl

We keep trying everything, we got sent to see a doctor who specialises in Sphincter of Oddi Dysfunction, which they thought it might be but just got told it’s not that so she’s getting very frustrated, now. There going to send her to a chronic pain doctor to manage the pain, but that won’t help with the symptoms. Been told it’s not crones/colitius , ibs , diverticulitis as these are in the family. They even phoned her and told her she had cancer at one point and then changed there mind. I’m just hoping someone might see my post and suggest something to try and we’re at a loss, and it’s alfull to see how she’s deteriorated

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has she been checked for gastroparesis all same symptoms I went through it all. took a couple years to find out. I went from 225 to 98 pounds thought i was going to die of cancer. they were doing tests and not telling me anything. finally they did the gastroparesis test. At least I know what it is, which is good. But no meds no cure to fix. Just dealing with it its hard cause bowel movements were rocks or water. they put me on a high protein low fiber diet. started with ensure liquid the moved to cereals my main diet now NO FIBER

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Moderator
Lisa Lucier, Moderator | @lisalucier | Aug 25 4:16pm
In reply to @vickyl "She was sent to see a doctor who specialises in Sphincter of Oddi Dysfunction, which they..." + (show)
Profile picture for vickyl @vickyl

She was sent to see a doctor who specialises in Sphincter of Oddi Dysfunction, which they thought it might be but just got told it’s not that so she’s getting very frustrated, now. There going to send her to a chronic pain doctor to manage the pain, but that won’t help with the symptoms. We feel like there just saying we’re deal with the pain and we’re being brushed off as they don’t know what it is, we have to keep fighting to been seen again
Been told it’s not crones/colitius , ibs , diverticulitis as these are in the family. They even phoned her and told her she had cancer at one point and then changed there mind. I’m just hoping someone might see my post and suggest something to try and we’re at a loss, and it’s alfull to see how she’s deteriorated
I do appreciate your suggestions
Were in Somerset uk I’m willing to travel anywhere in uk if it’s help

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Hi, @vickyl - I'm truly sorry to hear about your daughter's pain, diarrhea, blood loss, incontinence and weight loss. That is a lot to deal with.

If you are interested in checking out Mayo Clinic Healthcare in London, here is the URL for those services:
- Mayo Clinic Healthcare https://www.mayoclinichealthcare.co.uk/

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