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@johnbishop

Hi @sammiesarah, welcome to Connect. My PMR is currently in remission and I've had 2 occurrences of PMR. The first one lasted 3 years and I felt a little like you although your's is definitely worse than what mine was. A 20 mg dosage of prednisone made my pain go away but I struggled tapering down and if I did it too quickly it reared it's ugly head back up and the pain was bad.

What type of tapering schedule were you using? I worked closely using recommendations by my Mayo rheumatologist who told me about one of his patients that took 1/2 mg for a year going back and forth every few weeks from 1/2 mg to zero until he was able to stop taking it with minimal pain. For me, I had to go between 1/2 mg and 1 mg for about six months before I was able to taper off of prednisone.

Diet may also play a part in helping with PMR. Here's some information about it. I now try to stay away from most if not all processed foods. I still have my days though ☺

What to eat if you have polymyalgia rheumatica
-- https://www.medicalnewstoday.com/articles/321683.php

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Replies to "Hi @sammiesarah, welcome to Connect. My PMR is currently in remission and I've had 2 occurrences..."

Thanks for your reply. I am currently on 20MG of prednisone for two weeks then I am to drop to 15 for two weeks then 10 for two weeks and then hopefully I can get back down to 5mg ( where I was before this last flare up). The prednisone taper is pretty fast but that is because the doctor feels I can't stay up so high. She is hoping the Orencia kicks in and will offset the prednisone dosage. At one point a few months ago I did get down to 3 MG but I can honestly say that was probably too low. I think I may have set the flare up off with that low dosage. I just have a very hard time taking all this medicine. I feel I can out will it and be stronger than the disease but frankly I think I am losing that battle.