← Return to Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

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I’ve been on Hydroxyurea for 5 mos 500 mg 5 days a week for ETwith positive Jak2 mutation. I was very concerned about taking a chemo pill. In the beginning I did have some headaches, fatigue, and ocassional constipation. Afternoon fatigue is still a side affect, but I plan to start walking to build leg strength. My platelets are now in normal range at 356. After loosing 3 siblings to blood cancer I chose this treatment. Do what is right for you! Trust who you choose to oversee your medical needs. Do your research, this Forum helped me tremendously!! I am 70. I scheduled a conference with my doctor and included my husband and son. Write your list of questions down. Fill your spirit & thoughts with good things. I sit outside in the morning, I love birds and it’s a perfect place for my prayer time. I ‘ll be praying for you.

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Replies to "I’ve been on Hydroxyurea for 5 mos 500 mg 5 days a week for ETwith positive..."

Yes, mornings on the porch, where I am right now with my herbs, flowers, tomatoes, bees, and birds! Out here even in winter in my puffy coat cuz love the smell of snow! Free cheer-up gifts from Mother Nature.

My last labs came in with 320 platelets. I'm also 70, but no family history of blood cancers. I have a very knowledgeable doctor who counsels and referred me to an oncologist who treated his father. I have RA, osteoporosis and systemic scleroderma that first flared up in 2014. Recently my doc suspected an internal bleed and sent me to a Mayo trained gastrointestinal doc. She did find a hiatal hernia a month ago. 8 cm and angry. So, more meds in the arsenal to hopefully curtail surgery to repair
it. Before then, I had no medical issues. I've been on prednisone daily to keep mobile and relatively pain-free. Getting old sucks, but at this juncture it sure beats the alternative !