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Is it Parkinson's or not?

Parkinson's Disease | Last Active: Aug 26, 2025 | Replies (6)

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Profile picture for jatonlouise @jatonlouise

Have you considered getting a second opinion? There are several other diseases whose symptoms mimic Parkinson's. If you have any one of those, rather than Parkinson's, the concern is that if you're given an incorrect diagnosis, you'll be given the wrong treatment, I had trouble getting a diagnosis because the only symptom I had was increasingly severe fatigue. I went through an extensive series of tests - 3 times! at 3 different hospitals and none of the testing results yielded a definitive diagnosis of PD. After exhausting all the tests, the 3rd neurologist tried one more thing - he gave me an l -dopa pill to see how I responded and it was a miracle. ! hour after taking it, I could do things I hadn't been able to do in a couple of years (like go to the bathrooom on my own) But all 3 of the hospitals where I had my testing were reluctant to make the PD diagnosis for concern that it could be one of those other diseases and they were reluctant to send me down the wrong road. Your neurologist could very well be right. This is a disease that presents itself many different ways and she may have had other patients that presented their PD in the same way as yours. You might want to ask her whether the tests definitively ruled out the other diseases that mimick PD. If you have confidence in her response, then you can ask her "What's next?" If you don't feel confident in her answer, then it may be prudent to get a second opinion. It may not be necessary to repeat the tests - it may be sufficient for a different neurologist to look at the test results you already have and verify that: 1. the array of tests you've had covered all the bases; 2. These tests reasonably ruled out any of the other diseases that mimic PD; and 3. he/she would have reached the same conclusion as your neurologist. If the answers to all of these question is 'Yes" then you have reason to have confidence in your diagnosis; If the answer to any of these questions is "No", then ask the 2nd doctor to recommend what needs to be done to rule all of the mimicking diseases or to more definitivelly confirm the PD diagnosis.

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Replies to "Have you considered getting a second opinion? There are several other diseases whose symptoms mimic Parkinson's...."

Yes, I do think I will ultimately need to get a second opinion if the upcoming MRI doesn't provide any answers. As much as I like my current neurologist, I'm concerned that she is a little too committed to her original diagnosis. I think it would be a good idea to have a 2nd neurologist take me through the clinical exam again, to see if they see my symptoms the same way.

Thank you for sharing your story and for your suggestions. I wish you well with your health.