← Return to Comfort Questions for Upcoming Septal Myectomy

Discussion
hcmhope avatar

Comfort Questions for Upcoming Septal Myectomy

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 7 12:56pm | Replies (25)
Comment receiving replies
Profile picture for hcmhope @hcmhope

Thanks @walkinggirl, @karukgirl. This is incredibly helpful. I have also been reading this forum for learning everything I can, and it is comforting to know seeing so much support and firsthand info.

He is 26 and otherwise healthy. He has autism, and has a mild sleep apnea for which he has not taken up a CPAP so far (too uncomfortable, especially due to higher sensitivities due to his autism). I read that sleep apnea gets worse after septal myectomy, so I already started communication with his doctor to see if we can leave the hospital with a CPAP, in case it becomes necessary.

Thanks again for your info on this and all other posts!

Jump to this post

Replies to "Thanks @walkinggirl, @karukgirl. This is incredibly helpful. I have also been reading this forum for learning..."
Debra, Volunteer Mentor | @karukgirl | Aug 25 1:47pm

You are so welcome!
It's good to know you are so involved in his care. OSA (Obstructive Sleep Apnea) can cause increased care post-op, and once again...you are on it!
I'm so grateful that you found Mayo Clinic Connect and were able to gain some helpful information for your son.
It must be stressful going through this with him and his autism. Be sure to take care of yourself too. Do you have a support system in place to lean on? Friends, family, neighbor, church, or an autism support group?

VIEW AND REPLY