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Multiple Myeloma, Bone Marrow

Blood Cancers & Disorders | Last Active: Oct 5 2:23pm | Replies (13)

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Please get a myeloma specialist. Nothing less than an expert, one who sees MM patients all the time, not a hematologist/oncologist that only sees MM patients every once in awhile.

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Replies to "Please get a myeloma specialist. Nothing less than an expert, one who sees MM patients all..."

Any suggestions on how to find a MGUS/MM specialist? Is there a database anyone can use for this information?
I was dx. with MGUS 10/24. So far my M spike is low .08 & show no evidence of light chains except one lambda.
I originally started with slightly low gamma globulins about 2 yrs. ago. (Normal now) which began my journey.
I’m 68 & work 2 days/wk as a RN but I’m not sure if it’s my age, demand of my job or MGUS but I’m not as energetic as I was. Still going good but as I said, not sure.
I currently see a hematologist that I do like but I would be happy to see someone that is well experienced in MGUS/MM. I’ve been told there is no tx. for MGUS. Bothers me a bit.
Thanks.

@amberl99 Gregory started his first run on Chemo. Plan is to transfer to mainland for bone marrow transplant after he’s completed 4 cycles of Chemo here on Big Island at East Hawaii Cancer Center.