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Has anybody used lions mane for PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Aug 26 3:23pm | Replies (7)

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Thank you for your support. For me sadly it was a flu jab last October which instigated my PMR. 10 months of yet more drugs and horrific side effects leaves me depressed and demoralised. Like everyone with PMR it became life limiting almost over night. I just wish that there was a natural way of putting it to sleep. It would appear it doesnt go away on its own after time. I will go back to the rheumatologist and hopefully get the inner strength to persevere with it. I also had a dextramethazone injection. Appears steroids are useless for me. Once again thank you.

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Replies to "Thank you for your support. For me sadly it was a flu jab last October which..."

I am in a very similar situation to yourself. Flu jab 2 years ago triggered the PMR virtually overnight. After 18 months had very bad side effects from methotrexate. PMR is self-limiting and will eventually go any for nearly everybody, but the issue is that no one knows how long in will last for any individual. Doctors do tend to be very optimistic when they quote 2 years or less to their patients.

If the steroids have been useless so far have you investigated what dosage is needed in more detail. It could be that you need a higher dose. That - like the time PMR can last - can be a very individual thing. Sometimes 15 mg daily isn't high enough initially and no progress can be made at that dose. Soem people like myself readily needed to start out at a much higher dose to crush the inflammation before any relief could be had and it was only after that that tapering could be considered. But if steroids - even at a higher than usual dose - don't work then the doctor would normally considered whether the PMR diagnosis was accurate.