← Return to PF - Nonspecific Interstitial Pneumonia related to autoimmune

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Profile picture for kdwhitfield @kdwhitfield

The only supplement I take is Vitamin D. I have too much trouble breathing to mask even in crowds. While I was still on prednisone (between 10 and 40mg) I did catch colds easily. Without prednisone, I have only been sick with a respiratory virus once approximately 14 months ago. I caught that virus from my husband. It took several rounds of varyious antibiotics to recover. I have gradually learned to relax a bit. I hug friends and family. They know to keep their distance when sick. I eat at restaurants multiple times weekly--I always have and I don't think it ever resulted in catching a virus for me. I regularly attend social gatherings and meet with friends. Today I attended a funeral with about 200 other people. I am more cautious in cold/flu/covid season and watch for viral spikes in my community. At those times I do things like avoiding crowded movie theaters. If I were on an airline during cold/flu/covid season, I might consider a mask, especially if it wasn't difficult for me to breathe through. I am ever-alert to someone sneezing, coughing, or blowing a runny nose. I associate pharmacies with sick people so I use one that delivers or has a drive thru. I do my own grocery shopping at my neighborhood store, but I let Walmart and Amazon deliver most everything else. I've had pretty good luck staying healthy just by keeping strangers out of my personal space whenever possible and using good hygiene.
Worrying is only natural, but remember to think positive, and be patient while finding your groove.

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Replies to "The only supplement I take is Vitamin D. I have too much trouble breathing to mask..."

Thank you! This encouraging! I have well meaning firends and relatives in my life who are all over the spectrum in terms of "advice" on what I should and shouldn't be doing to keep from getting sick (of course I knew that came with the territory as soon as I choose to be transparent with my diagnoses). I think one of the big milestones for me will be my next HRCT and Pulmonologist appointment in Nov. Hoping for the opacities to clear up and some recovery in the PFT's where maybe we can say I'm in remission and I can go off this stuff!