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How to address PMR pain while decreasing prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)
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@johnbishop

Hi @anniegal, thank you for the private messaages. I would like to welcome you to Mayo Clinic Connect. You mentioned you figured out how to subscribe to the discussion but now you would like to know how to post a question or observation. There is a link in the left column at the bottom of every page on Connect - Get Started on Connect. This guide has step by step instructions for how to get the most out of Connect. Here is a link to the How to Take Part in a Discussion topic with step by step instructions:
https://connect.mayoclinic.org/get-started-on-connect/#take-part-in-a-discussion
Are you able to share what brings you to Connect? Do you have any questions or observations about polymyalgia rheumatica (PMR)?

John

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Replies to "Hi @anniegal, thank you for the private messaages. I would like to welcome you to Mayo..."
anniegal | @anniegal | Mar 16, 2019

I am wondering if others have had a missed dx of PMR and if so, for how long? l have recently been diagnosed by a top rheumatologist as having PMR despite normal labs. I have had crippling pain for years. I was told over and over again by other doctors it could not be PMR because my SED rate and C Reactive Protein results were normal. Dx’ed Graves in 1993, fibromyalgia 1996.
Prednisone feels like a get out of jail card. Started 2/14/2019. Now at eleven mg.

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