How Long Since Your Diagnosis?

Posted by mikeg73 @mikeg73, Aug 24 9:15am

If you don't mind, I'd like to know how long it has been since your diagnosis of Prostate Cancer? Also, how has it impacted your life (physical activity, travel, enjoyment)?

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Diagnosed in April 2012 with localized, low-grade prostate cancer. Went on active surveillance for 9 years. Had 28 sessions of proton beam radiation (April-May 2021) with 6 months of hormone therapy.

No impact at all on physical activity, travel, or enjoyment.

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Diagnosed March of 2023. I try to stay upbeat. Everything slowed down big time. Retired now so it's somewhat better for me. Never thought I would feel this old so soon. The last few months, I've learned to accept my journey and it makes it easier. Reading on the site on how long others have been on this journey gives us hope to keep moving foreword. Best to all.

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I was diagnosed in September of 2022 and had my final of 5 treatments, with a built in Mri radiation machine, in February of 2023.

My life after treatment has not been impacted at all. If anything, it has helped me appreciate how lucky I am for many reasons but not the least of which, in comparison to others here and people I know including my brother who had colon cancer, prostate cancer, partial amputation and is bed ridden with no control of bodily functions.

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Started my PCa journey in Fall of ‘22 with elevated PSA numbers. I had a RALP on 09/14/23. Post-op analysis shows it was contained to my prostate with Gleason scores of 6 (3 of them), and 7 (one 3-4 and one 4-3).

No real issues since the surgery. PSA #s have been undetectable since. Attitude is great. Enjoying re-engaging in life. (Had 2 knee replacements, 2 cataract surgeries and an Achilles repair surgery about the same time).

I’ve recently restarted yoga along with my usual cardio/weight training and it’s really helped.

I’m not giving in to this beast! Good luck to you!

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23 January 2014, a day that remains burned into my memory, the call from my urologist with the results of my biopsy.

Here I am, 11+ years later.

Attached is my clinical history.

How has it affected my life? Well, in many ways, little to no effect. I've said this before, there really had not been a difference in what I do, just how I feel doing it.

In the "early" days perhaps I was more stressed, then you just deal with it.

Some of the things I have done while on treatment:
Skiing with friends in Colorado
Bataan Memorial "hike" with my sister in White Sands, NM
Ring Road in Iceland with my wife.
Travelled to Las Vegas to watch my daughter play basketball in her college post season tournament then visited Red Rock canyon, Hoover Dam, Death Valley and the Valley of Fire.

There's more but you get the idea.

In part I've been fortunate that despite high risk, I'm here and treatment has been intermittent. I have a friend who died last year from this cancer, in his late 50s, so, I understand it's not all fun and games to the some 30k here in the US who die of, not with PCa. Flash to bang time for my friend was less than two years.

I control the things I can:
Attitude
Diet
Exercise
Stress.

All things in moderation though, I enjoy a good Manhattan, Kansas City has great BBQ...

I've celebrated a lot of wedding anniversaries, birthdays watched both daughters graduate from high school then colleges with their masters and become wonderful adults.

Kevin

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Diagnosed March 17, 2025. Only impact to my mental well being and side effects of prostatectomy, mainly ED. Otherwise no other physical impacts.

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Profile picture for kujhawk1978 @kujhawk1978

23 January 2014, a day that remains burned into my memory, the call from my urologist with the results of my biopsy.

Here I am, 11+ years later.

Attached is my clinical history.

How has it affected my life? Well, in many ways, little to no effect. I've said this before, there really had not been a difference in what I do, just how I feel doing it.

In the "early" days perhaps I was more stressed, then you just deal with it.

Some of the things I have done while on treatment:
Skiing with friends in Colorado
Bataan Memorial "hike" with my sister in White Sands, NM
Ring Road in Iceland with my wife.
Travelled to Las Vegas to watch my daughter play basketball in her college post season tournament then visited Red Rock canyon, Hoover Dam, Death Valley and the Valley of Fire.

There's more but you get the idea.

In part I've been fortunate that despite high risk, I'm here and treatment has been intermittent. I have a friend who died last year from this cancer, in his late 50s, so, I understand it's not all fun and games to the some 30k here in the US who die of, not with PCa. Flash to bang time for my friend was less than two years.

I control the things I can:
Attitude
Diet
Exercise
Stress.

All things in moderation though, I enjoy a good Manhattan, Kansas City has great BBQ...

I've celebrated a lot of wedding anniversaries, birthdays watched both daughters graduate from high school then colleges with their masters and become wonderful adults.

Kevin

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Hi Kevin @kujhawk1978 , do you mean your friend was dead within 2 years of diagnosis? That’s a really short time, right? Was it caught late? Any treatments he was on?

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Profile picture for johndavis60 @johndavis60

Hi Kevin @kujhawk1978 , do you mean your friend was dead within 2 years of diagnosis? That’s a really short time, right? Was it caught late? Any treatments he was on?

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Unfortunately, yes. On diagnosis, imaging was like the proverbial Christmas tree, osseous and visceral involvement from the start.

Triplet therapy slowed it down initially but it roared back with a vengeance.

His clinical data was foretelling, GS, GG, PSADT and PSAV.

His and his wife's decision was palliative care then hospice.

As that song goes, "only the good die young...."

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Hi great to hear your doing well, congratulations. Was curious as to how long you were on ADT? Thanks

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Diagnosed July2024 at age 66. Surgery November 2024. Gleason 9 with adverse conditions - cribriform, bladder neck, multifocal. Second PSA after surgery was detectable but below the threshold for more treatment. My urologist said recurrence and radiation are likely, but we don't know when. I survive through support groups and a loving wife who has my back at every turn.

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