Has anyone completely gotten over Long Covid? Please post here

Posted by bermuda8 @bermuda8, Jul 14 8:33am

Hi - I went to the Mayo's Long Covid program and the Dr. told me "the good news is that it will eventually go away". Hoping to hear from some folks that are completely over Long Covid. I am hopeful this will be the case for everyone suffering from this awful illness eventually. Most likely once someone gets over Long Covid they probably stop following this message board. It would be great if they would post their circumstances and it also would give us some hope.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for rstern99 @rstern99

Can you please add what vitamins you are taking. Have had this for 3 years and not getting better. Really need some help

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Oh, my gosh...there are a lot of things to take. But, mostly... amino acids so you can support your mitochondria which is the 'energy' part of all of the cells in our body.
There are specific products that offer mitochondria support. I buy a lot of my supplements from iHerb. They are affordable and ship quickly.
My best,
Pam

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Profile picture for rstern99 @rstern99

Can you please add what vitamins you are taking. Have had this for 3 years and not getting better. Really need some help

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I make it a point to drink a big glass of water with a packet of EMERGEN-C every morning when I get up. I also give myself B12 shots and take 50,000 IU of Vitamin D once a week these are all prescribed except for the Emergen-C). I have found sugar is not good, salt and white flour (gluten). I can tell a difference in how I feel when I can't stand it and eat some ice cream or something salty, even bread. I have not gotten over this virus. I am three years in. I have better days than I did for the first two years. It is my belief that this is due to inflammation as well as our bodies fighting themselves. Epstein Barr was reactivated in me and I saw that in my blood work in 2022, when I first got sick. There is so much that is not known. I keep seeing the name of the doctor on YouTube although I have yet to watch him. I plan on it. At the moment, my doctor is treating symptoms. I take several medications in the morning to be able to function better. Hang in there.

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No meds
Got hit every time i recovered from one of the followings 1.heart 2.lungs 3.sleep 4.fatigue 5.memory 6.brain fog 7.zombi Just to Name a few they all took turns .
What help me was no matter what i stayed active stared by just walking 1/2 a block moving all the time because I noticed AS SOON AS I would stop or slow down More Sh-- would get me

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Profile picture for law59 @law59

Hi @klf58. I dont recall reading your prior posts and this one I hope everyone can see! The kind way you handled explaining our invisible challenges I hope is the window for so many to really see that we cannot and do not function in relatable normal life ways🙃 Wish you the quickest healing journey 🌈.

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Thank you for that much appreciated hug @angelmom! And wish you many hugs too

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Profile picture for bestrongnow @bestrongnow

Unfortunately, I am also in the same sad boat. I have terrible shortness of breath and have been diagnosed with interstitial lung disease. Doctors believe it’s basically from my 4x with Covid. 😞 I am starting OFEV next week.

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@bestrongnow Apologies if I missed something, but would you explain what OFWV is? Thanks in advance ~ and best wishes.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@sweetwater9, I hope you saw the response from @klf58. We cannot and should not compare our illnesses or symptom management. What may be possible for one person, may not be for another.

I'm sure, like many other long-Covid sufferers, you've heard people say "but you don't look sick." There are many invisible illnesses. And people do the best they can within the limitations of their condition.

Sweetwater, it sounds like even the exertion of making a meal can be impossible sometimes. What coping strategies do you use to pace yourself and accomplish what you can?

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Dear Colleen ~ thank you for being here! My question does not pertain to this thread, but has to do with a long comment I saw and cannot find. It included a link to a Covid website and talked about autophagy. That, and the fact that the writer was 83 (I'm close!) is all I can remember. I'd love to see it again if finding it is easy for you. Don't stress....!

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Profile picture for klf58 @klf58

I think each of us here is suffering in our own ways. I'm sorry you felt ganged up on. As a writer with severe long covid I just wanted to respond to your initial comment. Most days I can only write a few sentences, so it takes forever to bring an entire book to publication. Before covid I was much more productive. I'm sorry that you have difficulty with cooking meals. I don't cook anymore everything is small plates like cheese olives hummus and the like. I also can no longer do activities of daily living like vacuuming. I still have to work full time and that takes more energy than I have, but I don't have the financial resources to quit. I have always found this forum to be supportive and I hope it can continue to be so. I'm grateful we have a moderator who can help us when we unintentionally say something that could be misinterpreted as hurtful.

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I think we all need to be careful with the words we choose when responding to others. We all are suffering with our symptoms. Sometimes people misinterpret words because they are being triggered by their own past (or present) experiences not by what the person has actually said to them.

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Profile picture for smalltown @smalltown

I had enchiladas with Covid which sent me into a seizure and damaged my right cognitive brain after 3 years I have developed neuropathic itchy, it is unrelenting and is 24/7 any suggestions are welcome but keep in mind I have tried just about everything!!!!!

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This got my attention because I think I had a bad reaction to some bean burritos that contained salsa. I found out that the salsa contained several things that can trigger histamine release or were high in histamine by themselves. I believe high histamine levels are responsible for at least some of our symptoms.

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Profile picture for sweetwater9 @sweetwater9

I think we all need to be careful with the words we choose when responding to others. We all are suffering with our symptoms. Sometimes people misinterpret words because they are being triggered by their own past (or present) experiences not by what the person has actually said to them.

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I agree and I also think we need to be accountable if we have said something that was clearly hurtful to someone else, as your comment was to me as a writer with long covid for 5 years, who struggles every day, as many of us do, you included. I wish none of us had to deal with the physical mental emotional and perhaps even spiritual impact of long covid. I come on here for support, so I hope that we can move on.

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Profile picture for sweetwater9 @sweetwater9

This got my attention because I think I had a bad reaction to some bean burritos that contained salsa. I found out that the salsa contained several things that can trigger histamine release or were high in histamine by themselves. I believe high histamine levels are responsible for at least some of our symptoms.

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@sweetwater9. Tomatoes for one are big in histamine and possibly fermentation of the salsa another big one.

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