I have had total loss of bowel control with my Severe Adhesive Arachno

Help Please. I've been in the hospital. About 3 weeks ago, lost all bowel control. I have a permanent supra pubic catheter & of course i got another drug resistant UTI Hospital was most horrible experience of my life. They refused me any pain management, while i was there. They refused to help with my steroids & told me my situation was difficult!!!. I finally left AMA. I was so sleep deprived from Decadron, no sleep in 3 weeks. I was hallucinating, screaming in pain. I am not exagerating. Can't get an appointment with a neurologist until end September. They gave me a referral for a neurologist. Earliest i can see is after Thanksgiving. I have titanium hardware from C3 thru my sacrum Hospital told me my condition too complex. Was told i would not go into shock, if stopped my Decadron. I am a retired RN & i know you can't take steroids, like pain pills. My treatment at this Honor Health Hospital, was beyond apauling Sorry, my inflammation is so severe, i can't barely walk around my apartment. I have had Arachnoiditis for a long time & did not want things to get to this stage. I got so angry, i said a few choice words to various doctors. I am sure, other people come in with multiple ailments Does anyone have any advice?? I am Medicare & Medicaid, am know pretty broke. Has anyone with Adhesive Arachnoiditis gone to a neuro rehab?? How do i prevent this from happening again. Bowel control is necessary in our society. No one wants to help. Know it's a rare condition, but i told the doctor to look it up on his computer. When i try to stop, or taper the Decadron, the pain, inflammation is so severe, i can't take it. Can hardly walk, at all