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I had a diagnosis of Primary Cutaneous Extra-nodal Marginal Zone lymphoma B-Cell non-hodkins cancer which totally blew my mind. It was out of the blue. Totally unexpected. I had a small red dot which appeared on my forehead. It didn’t go away? I was mystified. I thought it’s a pimple. It began to very slowly grow. In 2022 it was a small red nodule (like a spot but rock hard) with a target 🎯 like circle ⭕️ around it. I was told by 3 Consultants it was a basal cell carcinoma and nothing whatsoever to worry about. I asked for MOHs Surgery which they refused me as they said it was completely unnecessary. And they delayed 9 months approximately before they excised it. They actually asked me if I would agree to a nurse excising it and I refused this. Then 4 months after it was excised they telephoned to call me back into the hospital and informed me the biopsy results had come back and it was not a basal cell carcinoma at all!! It was a Primary cutaneous extra-nodal marginal zone B-Cell lymphoma non-Hodgins cancer. I too believe it was the Covid-19 Pfizer shots which kicked off my B-Cell symptoms. I had NO SYMPTOMS beforehand. My symptoms were tiredness/exhaustion and the visible small tumour on my forehead. Last year I stopped boosters for Covid-19, and flu shots. I will not be going for the shingles vaccine either. I have stopped all vaccines. I have been told it was indolent? I’m praying very hard. I’ve had nothing since. I am on watch and wait and blood tests. I have had no x-rays or scans. Was yours a Primary cutaneous extra-nodal marginal zone B-Cell lymphoma non-hodkins cancer?

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Replies to "I had a diagnosis of Primary Cutaneous Extra-nodal Marginal Zone lymphoma B-Cell non-hodkins cancer which totally..."

Hello, @steiner. My diagnosis for the slow-growing form of lymphoma is "nodular marginal zone lymphoma." It's different because it initially forms inside the lymphatic system. [I had to look up the difference.😉] But, it morphed in my stomach lining into DLBCL (Diffused Large B Cell Lymphoma), which is very aggressive.

I'm glad I had that vaccine. My body's reaction caused me to call my primary right away. The DLBCL could have continued to go unchecked, and my treatment and/or outcome could have been a lot worse.