How to address PMR pain while decreasing prednisone

Hi @rearea1, welcome to Connect. Thank you for sharing your story. I also have PMR but it is currently in remission. I've had two occurrences of it 6 years apart. It recently went into remission last February. I think you hit the nail on the head with diet. I'm probably not as good at it as you have been but I've made some definite changes. I started after reading how cellular nutrition helped Dr Terry Wahls get rid of the symptoms of her MS. I do believe that nutrition plays a major role in autoimmune diseases. It's great to hear you are doing so well.

Are you still on prednisone?

John

John, when I came out of the hospital on 8/13/18, I was put on 7 mg. Today I am on 5 mg and next week will drop to 4. I will continue to drop by 1 mg every 2 weeks. I trust my journey with my healer, massage therapist, chiropractor, food plan and breathing exercises. My great concern is my bones. Not sure, but I would like to hope that when off prednisone , we can stop the bones from getting worse. Has anyone experienced that?

Does anyone have sensitive teeth, thickening of the tissues inside the cheeks, and tightness around the TMJ’s as a side effect of prednisone? Dr. says there is no oral thrush. I was diagnosed with PMR 3 mos ago and been on prednisone (20-40mg) along with methotrexate. Curious to know if my mouth issues are related to PMR, a prednisone reaction, or an entirely different condition?

Does anyone have sensitive teeth, thickening of the tissues inside the cheeks, and tightness around the TMJ’s as a side effect of prednisone? Dr. says there is no oral thrush. I was diagnosed with PMR 3 mos ago and been on prednisone (20-40mg) along with methotrexate. Curious to know if my mouth issues are related to PMR, a prednisone reaction, or an entirely different condition?

John, when I came out of the hospital on 8/13/18, I was put on 7 mg. Today I am on 5 mg and next week will drop to 4. I will continue to drop by 1 mg every 2 weeks. I trust my journey with my healer, massage therapist, chiropractor, food plan and breathing exercises. My great concern is my bones. Not sure, but I would like to hope that when off prednisone , we can stop the bones from getting worse. Has anyone experienced that?

Does anyone have sensitive teeth, thickening of the tissues inside the cheeks, and tightness around the TMJ’s as a side effect of prednisone? Dr. says there is no oral thrush. I was diagnosed with PMR 3 mos ago and been on prednisone (20-40mg) along with methotrexate. Curious to know if my mouth issues are related to PMR, a prednisone reaction, or an entirely different condition?

My PMR began in the summer of 2017 as I was under stress when my mom passed in the spring and my husband was in and out of the hospital. Like others, mine started with stiff neck, moved to shoulders and hips. I diagnosed myself and then met with my GP. She measured inflammation level @ 49%. She eliminated other possibilities and soon I was taking the awful drug, Prednisone at 15 mg. Had all the usual side affect, and now have many more. A few months later my husband passed away and my health ran far downhill. In February 2018 And with the aid of an Eastern Medical doctor, I took some control by changing diet..no dairy, no gluten, no sugar, no alcohol, no fatty or fried foods. I eat protein, (good quality chicken or fish), vegetables and fruit. I have steel oats and eggs in AM. I take good supplements as well. I gradually reduced from 15 mg Prednisone to 1mg (stay on 15 for 4 weeks and then reduce by one mg every 2 weeks). All was going ok ,but suddenly in mid August 2018 fainted and was omitted to the hospital.
Now I am on a completely new path. Out of hospital I increased to 7 MG Prednisone ( the doctor wanted more and I refused). I am on the same food plan but now increasing anti-inflammation foods (fresh pineapple, spinach, turmeric, ginger- blended with coconut water each day). Here is the most important- 3 weeks ago I began with a healer. 6 weeks ago my inflammation rate was 39%. Just this week it measured 6%. Think about what this healer Is doing for me. After just 2 sessions and doing my correct breathing every day..39 to 6. My journey with him included learning how to breath.,learning I was sick because of all the “stuff” such as fear, hate, control, resentment, anger, inability to let love in and out..and naturally a high level of grief..long term crap that gets stuck in our bodies..not allowing room for good cells to generate. I am so happy that I am on my way to full recovery. I also see a medical massage therapist and a chiropractor. The prednisone is now killing my bones.. was told I need hip replacement. Not sure if I do or not, but I am sticking with my healer as I can walk and move without pain.

My PMR began in the summer of 2017 as I was under stress when my mom passed in the spring and my husband was in and out of the hospital. Like others, mine started with stiff neck, moved to shoulders and hips. I diagnosed myself and then met with my GP. She measured inflammation level @ 49%. She eliminated other possibilities and soon I was taking the awful drug, Prednisone at 15 mg. Had all the usual side affect, and now have many more. A few months later my husband passed away and my health ran far downhill. In February 2018 And with the aid of an Eastern Medical doctor, I took some control by changing diet..no dairy, no gluten, no sugar, no alcohol, no fatty or fried foods. I eat protein, (good quality chicken or fish), vegetables and fruit. I have steel oats and eggs in AM. I take good supplements as well. I gradually reduced from 15 mg Prednisone to 1mg (stay on 15 for 4 weeks and then reduce by one mg every 2 weeks). All was going ok ,but suddenly in mid August 2018 fainted and was omitted to the hospital.
Now I am on a completely new path. Out of hospital I increased to 7 MG Prednisone ( the doctor wanted more and I refused). I am on the same food plan but now increasing anti-inflammation foods (fresh pineapple, spinach, turmeric, ginger- blended with coconut water each day). Here is the most important- 3 weeks ago I began with a healer. 6 weeks ago my inflammation rate was 39%. Just this week it measured 6%. Think about what this healer Is doing for me. After just 2 sessions and doing my correct breathing every day..39 to 6. My journey with him included learning how to breath.,learning I was sick because of all the “stuff” such as fear, hate, control, resentment, anger, inability to let love in and out..and naturally a high level of grief..long term crap that gets stuck in our bodies..not allowing room for good cells to generate. I am so happy that I am on my way to full recovery. I also see a medical massage therapist and a chiropractor. The prednisone is now killing my bones.. was told I need hip replacement. Not sure if I do or not, but I am sticking with my healer as I can walk and move without pain.