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← Return to Hemiplegic migraine
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Hi Loupy. My, still difficult to think,… I got Covid 1st then all the things you describe happened to me. Drag my foot. Can’t think, talk. Shake. Nothing mild about it tho. I’m glad you had a break and sorry they’re coming back. The terror in the beginning when I had no idea what was going on. 3 times 1 day I figured I was dying. The 1st 2 I figured what’s the point? I’d rather go here than at the hospital. The 3rd I went to ER. Guy just said not even looking up, you’re not having a sroke. That’s it. Ok, well, that’s good. Gave me a gabapentin. I can’t imagine what it was like to continue work. I was going thru this everyday multiple times. I couldn’t leave my room. Just thinking of that is terrifying. I had no idea what was happening. It’s worse now but at least I know and I learned, for the most part, not to panic.
Good luck. Haven’t been here long and it’s still uncomfortable sharing but not as rough as keeping everything inside.
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Hey eastbaydave!
Wow it sounds like you’ve been going through it! I had a few bad headaches with my situation but mostly the neurological symptoms. If you haven’t yet, you might want to find a good neurologist and I recommend getting started soon on a preventative medication. Of course they may have to control your pain with other meds. But a good doctor will start you on something to prevent the attacks. When we were trying to see what would stop them, they put me on several different ones. I don’t remember what the side effects were that made me switch so often, but finally the Aimovig worked for me and the symptoms stopped. That was 4 years ago and here we are. I’m actually feeling much better than last week. I’ve been trying to stay away from triggers (look up the 5 “C’s”) and I think that has helped a lot. Other meds that I was on were Quilpta, Ajovy (injectable) and PO Nurtec, which did not work for me.
I really hope you start getting relief and can go back to work soon! I was out of work for three months until the meds started working well.
Gods bless!!