How are you doing in your path to recovery? I am hoping that you are getting some relief as well. What symptoms are you still having and what are you doing to improve them? I am open to any and all ideas to get balanced again.
I found that the diet, supplements and pool exercises are giving me the most improvement and relief.
My Rheumatoid factor went from high to negative just from the diet and supplements. I am still working on my sedimentation rate. It goes up and down between blood tests. I am taking no meds for this.
My Blood Pressure has gone from low to high, so that is why cardiologist put me on a low dose BP med with a diuretic. I normally do not have high blood pressure, but it has gone up since my stomach and leg edema have been giving me increased issues (increased again since my plane trip a couple of months ago). I am on a statin for the cholesterol, so am taking two meds.
In an AJMC article (Author Maggie Shaw January 5, 2023), I read that Spain and Canada have put a strong warning for using Evolocumab (Repatha) on adult patients who have established atherosclerotic cardiovasular disease. I read that on an independent review of Repatha in the FOURIER TRIALS the independent study group found an inconsistency rate between the Fourier clinical events and those noted by the local investigator for the CSR. This equates to a different cause of death in 360 of the 870 instances. After the readjudication from the independent study of the FOURIER trials, more people died on the the drug than the placebo group per the independent study. Once I read that, I started researching everything that I could find. I had no issues other than the high cholesterol before taking Repatha, and so I was very concerned because I started to realize that all of my medical problems started after being on this drug.
There is also a BMJ Open article published online December 30, 2022. This led me to reading everything that I could find on the discrepancies regarding Repatha. Of course, Amgen is denying these findings, but I believe the independent studies more.
Being that I had zero symptoms of any kind prior to taking Repatha, and then having such severe symptoms after being on the drug, I made the connection and discussed it with my doctors. It happened so slow and insidious that I did not realize Repatha was doing it to me until the damage was done. The last two years of taking Repatha, I was only on Repatha, so it was easy to know what drug was causing the problem. I have definitely improved since being off the drug, but there is long term damage that I am dealing with now. At least I no longer feel 90 years old and my leg and hip, and arm & shoulder joints are working much better now. No more UTI's since being off the drug, no more back and hip pain, and no more snapping of tendons either. It is the hand joints and edema that are left for me to contend with.
I would love to hear from others as wel,l to see if they are having any of the issues that I have been dealing with since using this drug.

Thank you for the invite. I wish that I could tolerate Repatha, but had to give up the drug after 4 months as the GI issues were truly crippling. Repatha worked magic on my numbers, but I lost total quality of life that I’ve regained since going off Repatha.