← Return to Cerebral venous sinus thrombosis (cvst). Stories you have on this?

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Hello. Glad I found you! I was diagnosed with a transverse venous brain blot on the whole right side in 2011, my clot is still there & the same. It took 3 months for a diagnosis & I was immediately admitted to ICU & had a spinal tap to relieve pressure in my brain. My blood was so thick, they had to use a syringe to get any blood, it was clotting as fast as it came out. I was healthy & just fine & one day after shopping, my sister was looking at me talking & I felt like I was here but not here, I knew I was in trouble. I was on Pradaxa for 6 months, no changes in my clot & my neurologist said there was nothing left to do, I have been on aspirin therapy for 14 yrs. I’ve had to go to the ER many times for bad headaches to receive an IV of Compazine. I did acupuncture 8 yrs for the headaches & my anxiety (which I hate)! I have no genetic clotting disorder & we aren’t sure what happened to me. My clot is a part of me after all these years Someone here mentioned sinus infection, my neurologist did say sinus infections can cause brain clots. I’ve managed well all these yrs but I’m left with anxiety, dizziness, sometimes my gait is off & fatigue but I’m also blessed that I didn’t have a stroke. I’ve learned to trust God in all things…big & small. I feel for each of you, this is a hard journey to be one & how wonderful that each of you decided to share your journey. Blessings~

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Replies to "Hello. Glad I found you! I was diagnosed with a transverse venous brain blot on the..."

Hi, @jpartin, and welcome to Mayo Clinic Connect. I'm glad you found Connect and this discussion, also.

You mentioned you are left with anxiety, dizziness, a gait that is sometimes off fatigue. Do you have plans to address these symptoms from here on out?

Hi @jpartin - you mentioned you were experiencing some anxiety, dizziness, your gait being off and fatigue previously. Wondering how you are doing now?