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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)Comment receiving replies
@evelyn123 - Hi - I am Tinkerbell and was diagnosed with Temporal Arteritis - It is also know as Giant Cell Arteritis. I had my temporal biopsy on 3 May 2017 at Mayo Clinic. I was started on 60 mg of Prednisone 1 and 1/2 years ago. I took my last pill yesterday (1/2mg). It has been a long road and I have gained 12 lb. Otherwise, I have done very well. I am hoping that I will be okay but there is the chance I may have to go back on the Prednisone depending on the symptoms. Once I started on the Prednisone the headache was gone by that evening. The biopsy was done 1 day after my emergency room visit. I also have other autoimmune diseases - hypothyroid and rosacea. If you have any question just get back to me.
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@evelyn123. I am elderdiana.Three years ago while on vacation, I temporarily lost my vision in right eye, also jaw pain. When I got home my primary care Doc told me to go to.hospital immediately.I had no headache pain. After 2 days of tests, I was told I did not have TA, also called giant cell arteritis, said it was migraine headaches in eye. My doc insisted I should have a biopsy which was done dec 1 2015 and TA was confirmed att another hospital. I WAS PUT ON 60mg of prednasone For 3 months and methotrexate was added. Prednasone was slowly lowered until last march 2018 down to 3 mg. That is when my sed rate and c reactive protein tests began to climb. My rheumatologist wanted me to come in once a month for intravenous injections of Actemra in her office.I REFUSED. Because INTRAVENOUS USE of this drug is not allowef by FDA.for temporal arthritis. Until a few weeks ago I was still on 3 mg and my c reactive protein test hit 27.I called and said I want more prdnazone and was put on 5mg. My blood tests are improving. I HAVE A LONG TIME Primary CARE DOC I CAN TALK TOO in addition to seeing the Rheumatologist, every 6 weeks. I hope you do not have TA it is a complex disease especially with eye involvement but it is .manageable. It is helpful to read Mayo connect about others withf TA. to view their progress and also good to have a good primary care doc in addition to your rumatolagist.