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Frustrated and confused about my meningioma

Brain Tumor | Last Active: Sep 20 1:40pm | Replies (26)

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Profile picture for jennsheppard @jennsheppard

I feel like you just described what I’m going through! I switched neurologists because she said to me, “Why do you have so many problems? We are the same age.” It wasn’t concern, it was accusatory. She’s the dr that was on call when I had my TIA and diagnosed my front right cortex meningioma when it was 1 cm in March of 2022. I switched neurologists and she started me on Botox injections for my migraines and I’ve been seeing her for a year. I just had another MRI and my tumor is now 1CM 3 years later and she told me she didn’t even know I had one, but now I have fluid and a large portion of atrophy on the left front side of my brain. I guess im, literally, losing my mind. I related to you losing time. I’ll drive and not remember how I got there. I will be laying down and can see and hear what’s going on but can’t talk or move. My brain shows I’ve had a stroke. She told my nothing showed on my eeg. I pray you get the help you need and your drs listen. Sorry for the babbling

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Replies to "I feel like you just described what I’m going through! I switched neurologists because she said..."

That’s awful. I hope you found better doctors