1. < Polymyalgia Rheumatica (PMR)

How to address PMR pain while decreasing prednisone

Posted by barbararene @barbararene, Feb 13, 2017

I have been diagnosed w poly myalgia rheumatica (pmr). Am taking 5 mg of predisone, was taking 10mg.
Every time I go on a low dose, symptoms come back. I can't take pain meds, but do drink wine to ease pain, although I'm told no alcohol w prednisone. Anything you can share as far as info

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Mentor
John, Volunteer Mentor | @johnbishop | Sep 29, 2018
In reply to @susie1950 "Yes. 40mg for 2 days than dropped me to 25mg today. I woke up stiff again...." + (show)
@susie1950

Yes. 40mg for 2 days than dropped me to 25mg today. I woke up stiff again. We will see how I do on 25mg. Having all this background from others sharing makes it less scary. I am very active and not being able to go mow my lawn is hard on me

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@susie1950 there's no golden rule for tapering down on prednisone. I'm sure they are trying to lower the dose as quick as possible but you might want to raise it up to 30 if you are still in pain when you drop to 25. 40mg to 25mg is a pretty big jump. I was started at 20mg for both occurrences of PMR and I tried to go down by 5 every week or 2 weeks then if I had any pain I would go back up for 3 days to the previous dosage, then go down 2-1/2mg instead of 5 to see if that worked OK. I'm sure your doctor will work with you to come up with a tapering plan that works for you. We are all different so there's no one answer that works for everyone. It is really good that you are active. With PMR it's important to keep doing some exercise but just not over do it.

REPLY
lioness | @lioness | Sep 29, 2018

@johnbishop with your PR. Have you tried the ginger-Tumeric tea?Id be fine interested to know how it affected you 😃

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Sep 29, 2018
In reply to @lioness "@johnbishop with your PR. Have you tried the ginger-Tumeric tea?Id be fine interested to know how..." + (show)
@lioness

@johnbishop with your PR. Have you tried the ginger-Tumeric tea?Id be fine interested to know how it affected you 😃

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I haven’t tried it yet. My daughter was supposed to pick some up for me but I forgot to ask her today.

REPLY
beryl | @beryl | Oct 1, 2018
In reply to @susie1950 "Yes. 40mg for 2 days than dropped me to 25mg today. I woke up stiff again...." + (show)
@susie1950

Yes. 40mg for 2 days than dropped me to 25mg today. I woke up stiff again. We will see how I do on 25mg. Having all this background from others sharing makes it less scary. I am very active and not being able to go mow my lawn is hard on me

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Hello Susie 1950 my name is Beryl and I am one of the unfortunate ones that has had PMR for a number of years .....most people I believe get over this thing in a couple of years or less so don't be discouraged at the longevity that some of us have taken to recover.......keep warm and onwards and upwards.....best of luck.....

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beryl | @beryl | Oct 1, 2018
In reply to @susie1950 "Yes. 40mg for 2 days than dropped me to 25mg today. I woke up stiff again...." + (show)
@susie1950

Yes. 40mg for 2 days than dropped me to 25mg today. I woke up stiff again. We will see how I do on 25mg. Having all this background from others sharing makes it less scary. I am very active and not being able to go mow my lawn is hard on me

Jump to this post

Yes Susie 1950 you will see that the frustration of not being able to go and do things in the garden and being as active as we would like to be is common with us all .....but be good and do not over do it in any way give yourself a chance to recover .....Beryl

REPLY
susie1950 | @susie1950 | Oct 4, 2018
In reply to @lioness "@johnbishop with your PR. Have you tried the ginger-Tumeric tea?Id be fine interested to know how..." + (show)
@lioness

@johnbishop with your PR. Have you tried the ginger-Tumeric tea?Id be fine interested to know how it affected you 😃

Jump to this post

I was trying Tumeric before I was diagnosed. It didn’t help me any. I hope it helps you

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Oct 4, 2018

I found a new healthy (I think) cereal at Costco this past weekend. I was surprised that it didn't taste too bad. I've been taking turmeric capsules daily to help with inflammation and at one time I bought some organic turmeric powder and tried using a 1/4 tsp in a cup of coffee...yuck, didn't do that more than once. I like my coffee in the morning. 160 calories a cup without the milk so not too bad.

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2 replies
paulinef | @paulinef | Oct 4, 2018
In reply to @johnbishop "I found a new healthy (I think) cereal at Costco this past weekend. I was surprised..." + (show)
@johnbishop

I found a new healthy (I think) cereal at Costco this past weekend. I was surprised that it didn't taste too bad. I've been taking turmeric capsules daily to help with inflammation and at one time I bought some organic turmeric powder and tried using a 1/4 tsp in a cup of coffee...yuck, didn't do that more than once. I like my coffee in the morning. 160 calories a cup without the milk so not too bad.

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The cereal would probably be too sweet for me but I drink camomile tea with sliced ginger root every evening and that helps

REPLY
sallygosse | @sallygosse | Oct 4, 2018

If you buy curcumin capsules instead of turmeric you may find a different. Curcumin is the condensed form of turmeric. Good luck!

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1 reply
lioness | @lioness | Oct 4, 2018
In reply to @susie1950 "I was trying Tumeric before I was diagnosed. It didn’t help me any. I hope it..." + (show)
@susie1950

I was trying Tumeric before I was diagnosed. It didn’t help me any. I hope it helps you

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@susie1950 glad you responded I was wondering if would help your condition

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