How to address PMR pain while decreasing prednisone

@helpforpmr Mysterious rash most of the time on skin and on or in internal organs such as bladder, esophagus, stomach, etc. Looks like #, like a newly plowed field, with furrows running at 60 degree angles. Have been told it is Amyloid macular skin rash. Has been cut out of my larynx, skin and other areas, but always returns. Had it now for 40 years.

Could you explain how I can send a private message to someone.  Each time I have tried it gives me a message that I have to choose one member ... I typed in her connect name and that's what it prompted me to do.
Thank you.

Hi @olegraymare - Here's an example: I clicked on your Connect user name at the top of your post (first image). This took me to your profile screen (second image). I clicked the Send Private Message link at the bottom of your profile. This opened the Compose message screen with your Connect user name already filled in the Recipients: part of the message. Then all I have to do is type a Subject and then a Message and then click the Send button at the bottom. This sends a private email to the member who you selected by clicking on their user name. Try it by clicking on my name if you would like.

John

Hang in there. My understanding is low doses work well for pmr. Side effects sb mini mum at low doses. I'm on year 3. 3 mg of prednisone daily. I'm 50 yrs old.
I understand all the pain. I think the right amount of prednisone is the key. I also find trams doll helps me. It will get better. Be patient. Find what kind of exercise will work best for you. I work but have to have a couple hours rest a day. This is a puzzling illness.
Diets have not made any difference for me.

So, I did that ... I'm trying to send a message to a member who joined recently ... I think it's helpwithpmr or similar.  Anyway, I did what you suggested and her name did not appear in the area where her Connect user name should appear.  It tells me "at least one member should be selected".  When I scroll down below in the list of names, her's is not there.  Nor is mine. 

Guess I'm missing something : 0
Thanks for all your help.  I am enjoying reading all the posts.  Once I get the hang of the web site, it will be much better.  I'm also getting a lot of posts for diseases I don't even know what they are !?  I thought I signed up for just PMR.?
Jan
P.S.  I think I saved some instructions that one of the mentors sent to me.  I'll read through those again.  The problem may not be on my end.  Maybe the helpwithpmr person has not done something on her end.?

  I was finally successful.  I was trying to add her name under "Add New Recipients" and it wasn't working for me.  Thanks again for passing along all the great information (including how to use this valuable resource) !!

I'm not sure how to respond here to each message I received, so forgive me if this is general. I don't recall the dose of Prednisone I took for poison ivy. It was years ago. But it made by heart go into vt, break out in a sweat, head pound and body shake. It was awful. It was one of those packs you take 4 than 3 than 2 than 1. I have noticed the 5 mil of Prednisone recently prescribed for OMR so far has indeed minimized the pain. I am moving better and today I don't feel the need to even take another pain aid like Tylenol. I couldn't get thru the morning before without that assistance and a hot shower. So far so good. My doctor wants me to increase it to 10 mil but since it's working so good at 5, I really don't want to take the chance.

Hi @mymolly57 -- That's good news that the 5 mg dose of prednisone is working to help with the pain. Did you discuss your feelings with your doctor? I think it's important to have that discussion to find out why he wants you to increase it when it's working at the lower dose. I'm with you on not taking a higher dose than necessary. You really have to be your own advocate in your health care and be part of the decision making.

John

@helpforpmr I have learned something this week. Hallelujah! Not for WHAT I learned but that I actually learned something. Anyway, I have had a sharp pain about halfway between my left shoulder point and my nipple. I learned just this week that this pain is probably one of the pain points of fibromyalgia. For years I have been blaming it on hATTRwt! Can you believe it? 60 doctors or so in the top clinics of America; all wrong.

I'm sorry, I just figured out how to post to your reply. I don't recall the dosage for the Prednisone since it was years ago. It was a four day treatment where you take four than three than two than one pill and I not only had SVT but sweating, shaking and lots of other unpleasant symptoms. I just started taking the 5 mi of Prednisone for OMR the other day and it already seems to be working with no side effects. The pain is not as severe, I was able to sleep well and I did not need Tylenol this morning. I'm hoping my Rheumatologist will not ask me to increase it to 10 since so far so good on the 5. Thanks for the information and for responding. It really helps to know I am not crazy and that this immune disorder is real. I also talked to my brother who went thru the same thing 5 years ago when he was diagnosed with Lupus. He could not walk to the mailbox without pain and now he just completed his 4th Triathlon. It's good to know there is hope.