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My symptoms and journey are very similar to mine although I was diagnosed with bile acid malabsorption, particularly because a urine-type secretion was appearing in my bowel movements. My fat absorption stool tests were normal. Pancreatic insufficiency was also ruled out. What caught my attention was that you mentioned that sugar is a big trigger for you. It just so happens that I have the very same problem. I am going to be asking my PCP to test me for ASID or acquired sucrase and isomaltase deficiency syndrome. I honestly believe that it's exactly what I'm fighting. These enzymes required for digestion are made in the small intestine. I believe this is the big mystery I've been fighting. I'm going to work on my gut as I believe I suffer from a Leaky Gut and that's what's causing my food intolerances and sensitivities including what I just mentioned. Also, it can masquerade as IBS and SIBO and fat malabsorption. Hope this helps. Good luck to you on your journey!

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Replies to "My symptoms and journey are very similar to mine although I was diagnosed with bile acid..."

YES!!! My granddaughter told me about the genetic sugar malfunction but that was more determined and found at birth or shortly there after so didn't think I had that. But i didn't know there was also an acquired one! Thank you so much for that juicy tidbit! I will research that more.

My PCP does functional medicine so we've been on a two year journey with GI mapping, vitamin/mineral testing/ and food intolerances. Lots of various supplements to deal with the dysbiosis in my gut, yet nothing would really pinpoint the diarrhea issue after my gallbladder was removed prior to seeing her. She labeled it as IBS which basically is a catch all name. My candida was sky high on one GI map and so i was put on antibiotic for 8 weeks. still had diarrhea.

I think back before the gallbladder and for years I'd have unexplained diarrhea and well almost always blamed it on something I ate. Kids would say maybe you have IBS. Then things got so bad and pain came and then gallbladder was removed.

Is there a fix if you have ASID? not eat sugar i'm sure, but what about fruits or small amounts of sugar say in a spagetti sauce that has sugar in it? etc. What ahve you learned so far about ASID and I assume there are tests for this?

My PCP is super good about working with me and taking on my suggestions so I'm sure she would order any test for this.

I'm excited now again. Thank you so much for that mention of ASID! Will be wanting to get retested with a GI map/vitamins/food intolerances to see if anything has changed since last ones a year ago with all the supplementation i've been on trying to fix the diarrhea and dysbiosis. Leaky guts are a real thing! and too many medical doctors don't go there at all. One almost needs to find a fucntional medicine doctor and so gladd I found a medical doc PA who has her certificate in functional medicine also. Best of both worlds really.
Again thank you.

I forgot to mention something I find rather important. I'd like to refer you to Jenna Volpe, RDN, LD, CLT from Whole-istic Living. She's the one that actually opened up my eyes to the possibility of having ASID (acquired sucrase and isomaltase deficiency syndrome). In retrospect, it makes sense now why cholestyramine was a trigger to me. I was initially put on that medication for the BAM (bile acid malabsorption) and decided to discontinue usage due to the fact that aspartame (orange-flavored) can cause cancer of the liver. I found this out due to extensive research on NIH, I believe. Additionally, the lemon-flavored powder contains sucrose which would explain what triggered what I initially thought was IBS! I find that to be very interesting. What if it is ASID all along. That would have a huge bearing on the type of treatment! However, I'm not ruling out a possible parasitic infestation. I plan on getting tested for that in about a month. I'm thinking of getting tested with Thorne. It appears they have a pretty good reputation for such matters. I am open to suggestions. Take care, all and good luck.