Has anyone completely gotten over Long Covid? Please post here

Posted by bermuda8 @bermuda8, Jul 14 8:33am

Hi - I went to the Mayo's Long Covid program and the Dr. told me "the good news is that it will eventually go away". Hoping to hear from some folks that are completely over Long Covid. I am hopeful this will be the case for everyone suffering from this awful illness eventually. Most likely once someone gets over Long Covid they probably stop following this message board. It would be great if they would post their circumstances and it also would give us some hope.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for sweetwater9 @sweetwater9

Do not mean to be negative but how sick can she be if able to write and publish a book? I am lucky if I can manage to make dinner.

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I am on year five of long covid. I'm a writer and have published since then. How sick am I? Very sick, but writing does not require physical labor, although it's very difficult for me to come up with the right words due to brain fog, but please do not dismiss other people. Each of us does what we can. If I didn't have my writing I probably would not be alive. It is my only outlet for grief over having lost my pre-covid self and health.

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Profile picture for klf58 @klf58

I am on year five of long covid. I'm a writer and have published since then. How sick am I? Very sick, but writing does not require physical labor, although it's very difficult for me to come up with the right words due to brain fog, but please do not dismiss other people. Each of us does what we can. If I didn't have my writing I probably would not be alive. It is my only outlet for grief over having lost my pre-covid self and health.

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I had enchiladas with Covid which sent me into a seizure and damaged my right cognitive brain after 3 years I have developed neuropathic itchy, it is unrelenting and is 24/7 any suggestions are welcome but keep in mind I have tried just about everything!!!!!

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Profile picture for klf58 @klf58

I am on year five of long covid. I'm a writer and have published since then. How sick am I? Very sick, but writing does not require physical labor, although it's very difficult for me to come up with the right words due to brain fog, but please do not dismiss other people. Each of us does what we can. If I didn't have my writing I probably would not be alive. It is my only outlet for grief over having lost my pre-covid self and health.

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Hi @klf58. I dont recall reading your prior posts and this one I hope everyone can see! The kind way you handled explaining our invisible challenges I hope is the window for so many to really see that we cannot and do not function in relatable normal life ways🙃 Wish you the quickest healing journey 🌈.

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Profile picture for sweetwater9 @sweetwater9

Do not mean to be negative but how sick can she be if able to write and publish a book? I am lucky if I can manage to make dinner.

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@sweetwater9, I hope you saw the response from @klf58. We cannot and should not compare our illnesses or symptom management. What may be possible for one person, may not be for another.

I'm sure, like many other long-Covid sufferers, you've heard people say "but you don't look sick." There are many invisible illnesses. And people do the best they can within the limitations of their condition.

Sweetwater, it sounds like even the exertion of making a meal can be impossible sometimes. What coping strategies do you use to pace yourself and accomplish what you can?

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Profile picture for law59 @law59

Hi @klf58. I dont recall reading your prior posts and this one I hope everyone can see! The kind way you handled explaining our invisible challenges I hope is the window for so many to really see that we cannot and do not function in relatable normal life ways🙃 Wish you the quickest healing journey 🌈.

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Thank you. I'm actually so tired after dragging myself through work, which I have to keep doing for the insurance coverage, that I don't post often, but that particular post caught my eye. I appreciate your kind words of support and likewise wish you all the best with your own healing

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Profile picture for klf58 @klf58

I am on year five of long covid. I'm a writer and have published since then. How sick am I? Very sick, but writing does not require physical labor, although it's very difficult for me to come up with the right words due to brain fog, but please do not dismiss other people. Each of us does what we can. If I didn't have my writing I probably would not be alive. It is my only outlet for grief over having lost my pre-covid self and health.

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I appreciate your taking the time to respond. You kindness is appreciated in your explanation. Your word dismiss is harsh though. As I am not dismissing "anyone."

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Profile picture for Colleen Young, Connect Director @colleenyoung

@sweetwater9, I hope you saw the response from @klf58. We cannot and should not compare our illnesses or symptom management. What may be possible for one person, may not be for another.

I'm sure, like many other long-Covid sufferers, you've heard people say "but you don't look sick." There are many invisible illnesses. And people do the best they can within the limitations of their condition.

Sweetwater, it sounds like even the exertion of making a meal can be impossible sometimes. What coping strategies do you use to pace yourself and accomplish what you can?

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I think I need to be more careful in what words I choose to write. Thanks for the reminder in your first paragraph. I was not inferring that that this Toni Bernhard was "not" ill but wondered how she could accomplish so much when so ill. I feel a little like I am being ganged up on and that is upsetting.

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Profile picture for sweetwater9 @sweetwater9

I think I need to be more careful in what words I choose to write. Thanks for the reminder in your first paragraph. I was not inferring that that this Toni Bernhard was "not" ill but wondered how she could accomplish so much when so ill. I feel a little like I am being ganged up on and that is upsetting.

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I think each of us here is suffering in our own ways. I'm sorry you felt ganged up on. As a writer with severe long covid I just wanted to respond to your initial comment. Most days I can only write a few sentences, so it takes forever to bring an entire book to publication. Before covid I was much more productive. I'm sorry that you have difficulty with cooking meals. I don't cook anymore everything is small plates like cheese olives hummus and the like. I also can no longer do activities of daily living like vacuuming. I still have to work full time and that takes more energy than I have, but I don't have the financial resources to quit. I have always found this forum to be supportive and I hope it can continue to be so. I'm grateful we have a moderator who can help us when we unintentionally say something that could be misinterpreted as hurtful.

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Getting Covid on a trip from Italy in 2019, I can say I'm not 100% but I sure am close considering I've aged 6 years. In 2019 - 2024 I was about to give up but I take busiprone 2 x a day for nausea and stomach acid, Lexapro 1 x a day for a perk up and Andrew Lessman Urgent Energy 1 x per day. I have to have 5 mg of Ambien to sleep. I feel so much better than I did 2 years ago. I just had to get my mind to realize I can't go back, I've aged, I'm almost 60. I'm back to internationally traveling (I flew 15 hours to Africa), I'm exercising and running 3 miles again. It just takes time and positive thinking. Baby steps got me here. Set small goals and keep adding. You can overcome this!!

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I'd like to also add this: Visit the free YouTube channel of Gez Medinger. He is one of us and has surrounded himself with all manner of professionals who are working to find a cure. He is a 'data' guy and is up to the minute on information. You'll be pleased.

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