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DiscussionEssential thrombocythemia (ET): When to start hydroxyurea (HU)?
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Replies to "It can but it’s just a slight amount. My guess is he will start you on..."
Thank you!
Does anyone else have any experience with higher doses of HU? I am on 1500 daily and have hair shedding, nausea, headaches and fatigue. My white cells are so low I am living like it is the pandemic. I am 55 diagnosed in November 24 and started HU in June. My platelets are only slowly decreasing and now at 600. I am hoping to hear my dosage will be going down sooner than later.
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Congratulations on the rapid lowering of your platelet count, nypara66!
Not everyone is so lucky, though. For me, it's taken two years of HU to bring my count down from the 700s to the 400s.
So to those starting on HU, don't expect miracles. Just know that every dose is protecting your bone marrow and reducing your chance of cardiac issues.