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How do you plan your day and conserve energy? Are you a Spoonie?
Autoimmune Diseases | Last Active: Aug 23 5:15am | Replies (125)Comment receiving replies
I'm an ardent "Spoonie", although I haven't used that moniker. I read The Spoon Theory, by Christine Miserandino, and caught the concept! I had designed & had been using my own Excel doc calendar, obviously with columns for days, and lines for hours; BUT I added a small column with my total spoons at the top and the sum of spoons used (or overused) at the bottom. For each appointment or chore I assigned a number I anticipated or considered that to be, etc. etc. OH MAN !! That changed my life! I could wisely accept an invitation or decline - or choose to eliminate something to replace the time.
Then along came Google calendar - Calendar Nirvana! I began filling in all the "routine" daily activities, Must-Dooz, Wanna Dooz, Social Appts, Medical Appts., etc. etc. What fun - all those colors. and automatic renewal and repeats.
But it made the process of monitoring myself less like discipline of taking my meds., and more like creative fun....
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@milz Welcome to Mayo Clinic Connect! I see this is your first post, and it is full of interesting ideas. Frankly, creating and keeping a list/calendar like that would use up a lot of my spoons! LOL But it surely is working for you, and others might be inspired to do the same.
Over the course of time, I have learned to be gentler on myself, and not push so much. Yes, there are things to do, tasks to accomplish, appointments to keep. The ones that require participation do get done [sometimes it is "eventually"!] It's hard to not over-commit. Those who are close to me understand that I may want to do something, but may not be able to on a given day if my sleep was less-than-adequate, or meds are exhibiting some side effects, etc. And yes, sometimes I push myself only to pay for it later!
Ginger