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Replies to "Thank you. How do you suggest I find out how experienced my cardiologist is with HCM?"
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 4 10:29am | Replies (10)
Comment receiving replies
Replies to "Thank you. How do you suggest I find out how experienced my cardiologist is with HCM?"
@starbear , I would start with checking the link I sent from the HCM organization. They have a section that shows you Centers of Excellence by State.
The Mayo Clinic, the Cleveland Clinic, Cedars-Saini, all are COEs for instance. These are places that have excellent research, treatment and outcomes for HCM/HOCM patients.
HOCM is such an elusive condition at times to even diagnose, which happens to many HCM patients. They go misdiagnosed for years with other heart conditions because HCM mimics many other things.
It is important that you educate yourself on what is living inside your heart. That way you will be able to advocate for yourself and help in the process of choosing the right treatment plan going forward.
I would not let distance or personal convenience be my deciding factor in choosing a place to go either. I flew across the country from CA to MN to be seen at the Mayo Clinic. Best decision I ever made.
You want to be able to swing that tennis racket like a champ for as long as you can!