← Return to Cerebral Small Vessel Disease - How are you coping?

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Profile picture for karen252 @karen252

I just found out by coincidence that I have CVSD. I had a bad reaction to a vaccine that made my immune system go crazy, and all labs came back normal, so I suggested to my primary care provider should I get a brain MRI. Lo and behold, I found this out. I call this a blessing in disguise. I have a lot of fatigue, and the brain fog is unreal. I am waiting to see my cardiologist and neurologist. Does anyone else experience this? How do you deal with it?

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Replies to "I just found out by coincidence that I have CVSD. I had a bad reaction to..."

@karen252 I so understand what you’re xperiencing.
My doctor did an MRI because she suspected Mild Cognitive Impairment and it showed severe CSVD. This dx has so changed my life for the worse. I can’t stop dwelling on it. I am having a hard time finding a vascular neurologist and that doesn’t help.

So I’ve done a lot of research and have changed my diet and am exercising, however since my CSVD is severe I wonder if it is pointless.

Sorry to dump on you but I have no one to talk it over with.