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My MDS does not respond to treatments. What's next?
Blood Cancers & Disorders | Last Active: 23 hours ago | Replies (30)Comment receiving replies
@snakebite you are a wise man. You have had so many years of treatment and a wealth of information to share. Yes IMO God has a hand in all of this, and brings me hope. I love the term "bag a blood." @jeffreykassover1 don't give up finding a treatment option. University Hospital, Anschutz, in Denver does not have an age limit for Stem Cell Transplants. You might try contacting the Blood Cancer clinic there(https://www.uchealth.org/provider/marc-schwartz-md/) I saw Dr. Schwartz yesterday. I am on the transplant path again.
Replies to "@snakebite you are a wise man. You have had so many years of treatment and a..."
Hi - I am going through a transplant now. Such a hard decision, but after communicating with the many fine folks on this blog, I decided to go through with it. My MDS is B2, intermediate I think. I did 4 rounds of Dacogen & had 3 blood transfusions. I felt better afterward & blood numbers/biopsy results looked good. However, my drs told me I could easily relapse to AML; how quickly that might happen no one could say. And of course that would make treatment all the more difficult.
I feel I was led by God to do this & have faith I will be fine. I am 71 years young.
Hugs,
Diane
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My doctor seems to think that it's not a great option for me. Almost 78, fair shape but overweight, possible heart issues, though none recently indicated. In his opinion, yes, I could probably find somewhere, such as Sloan, Mayo, or Moffitt, to do the Transplant, but he really wonders what the doctors' motives are if the prognosis is not great. I'm starting to be transfusion dependent, hoping to only need transfusions every 3 weeks. Maybe I'll get lucky, and something will appear in the meantime.