Radiation or not after surgery for endometrial cancer?

For what it’s worth I had 25 external beam and 3 brachytherapy which follows what your md said

I had two Brachy treatments. Mine were high dose AND I did not have EBRT or any other type of treatment. I think (and I'm not an expert) that most dosages are around 5-7 Gray (Gy) each; each of mine was more than double. Maybe you had high dose?

It was 2 High dose treatments. Sorry forgot there were high/low

Thank you for response,how long ago were you diagnosed and treated?

Not to alarm anyone, but awhile back, in a thread, I was reading posts from few years ago, lady stage 1 is how it started. She was given hysterectomy only, not follow up therapy or treatments since doctor said low risk. I've read that A LOT w/stage 1 endometrial cancer it seems. Well, her follow up scan showed all clear, but she was having some ongoing issues of some type, so she pressed further with doctor. They did some kind of very specific MRI scan, found cancer in bone or breast, can't remember right now, but it had spread and reg scan they do at follow up screenings, as reg maintenance, didn't find it. Anyways, there were some posts in between, back and forth, but then she came back, said had spread to her brain in just less then year past that. She was very VERY Upset, that her original doctor has not advised treatment, since she was only stage 1. Did only hysterectomy, no follow up. People had been going back on her thread to check on her later, no response. I only tell this, because it was very upsetting, and I'm stage 3, pole mutated. So, it told me to be very vigilant and proactive in my own care. I was thinking before reading all that thread, "I wish I were only stage 1, needing hysterectomy only...,"as me and Dr talked about. That they sometimes don't do any other treatments if stage 1. Well, after reading that, I realized, at no matter what stage of cancer, definitely do your reseach, and be proactive, seek answers as you are, because "caught early" is very good, but not a guarantee its not to be taken seriously. Prayers for wisdom, complete healing for you.

Hi. Had hysterectomy December 2022. Chemo and all radiation completed in august 2023

I also had only 2 Brachy treatments after my full round of external radiation. I never asked why not 3, but I remember being relieved about it.

Happy to have found this forum. In Nov
2020 my diagnosis was stage 1 endometrial cancer; complete hysterectomy, lymph nodes clear. Five sessions of brachy. Told I have excellent prognosis. Forward 4 years to Dec 2024. Pain in lower right pelvic area. PCP ordered X-ray & was told I was constipated. I disagreed and pushed for days for a CT scan given my history. CT scan showed a large tumor. Recurrence of endometrial cancer. This time it traveled to my
Upper left lung 4 nodules. Metastatic stage 4. I’m half way through chemo have 3 more rounds. Fighting for my life. Advocate for yourself. If I did not push for the CT scan, I would be looking at end of life by December. At least now, I have a chance!

@karina60 Thank you for sharing your journey. You wrote what many of us have shared again and again. Be that squeaky wheel. Advocate for yourself. You are the expert with your own body. If you feel something is not quite right with your own body then push for answers. Any one of us who has had a cancer diagnosis in the past knows that we are at risk for a recurrence or another cancer. Here is to the wish and hope that you are looking at many more years of life ahead due to your own advocacy.

Would you like to share the kind of chemotherapy you are receiving? How are you feeling?

@naturegirl5 thank you for connecting with me! I copied my chemo/immunotherapy below. My cycle is every 21 days I’ve just completed 3 of 6 infusions. Next is Sept 8. I have my 1st CT scan on Sept 5 to check progress. I’m doing very well so far. My main side effect is pain that is present in the days after my infusion. The pain starts to go away about 6-8 days after infusion. I’ve had no tummy /bathroom issues. Grateful for that but the chemo pain is no joke. Neuropathy is also present. I’m staying positive but this weekend was tough. I didn’t hear from anyone all weekend. I felt so alone with my cancer but, people have lives to lead and I understand that. It was just strange for it to be quiet after many months of people constantly checking on me. I bet a lot of these feelings are familiar to the survivors on this forum : )

Regimen: BILH OP Dostarlimab-gxly / PACLitaxel / CARBOplatin