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Justin McClanahan, Moderator avatar

Pacemaker & ICDs: Introduce Yourself & Meet Others

Pacemaker & ICDs | Last Active: Sep 12 6:38am | Replies (116)

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Profile picture for dianemari @dianemari

Hi! I’m Diane. Just found this site - after getting a ICD about 3 wks ago and would like to know about others experiences with ICDs.
My initial experience has been less than optimal! One lead came out before I even got back to recovery room and I had to have a 2nd surgery back to back with the first to replace it 😡.

3 days later, at home preparing for bed - about minute my heart started racing and I went into AFIB (first AFIB since getting a very successful ablation 1&1/2 yr ago). Before I could get to the ER - the damn ICD zapped me (4times!) shocking (pun intended - as I did not think AFIB would set it off - only Tackycardia and/or sudden cardiac arrest. I then called 911 and went into ER via ambulance and hospital stay for 3 days; discharge papers from the hospital showed “inappropriate shock/therapy” — and my ICD was re-programmed, presumably so that AFib would not trigger it again - however I am still very anxious about this thing - over which I have no control!
I would love to hear from others if you with ICDs

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Replies to "Hi! I’m Diane. Just found this site - after getting a ICD about 3 wks ago..."

@dianemari
It has been a long time but many years ago I went into a local hospital as they though my leads got infected. I went into AFIB but they waited for me to self convert overnight.

Turned out leads were not infected (did blood test that took several days). When I saw my EP at Mayo I asked why did not my ICD shock me back in rympthm for my AFIB. I was told it was for ventricles VTAC.

Then came the AFIB biggest worry to EP and cardiologist is causing a stroke from blood clots.