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Myotonic Dystrophy type 2
I was diagnosed at Mayo in Nov, 2013 with Myotonic Dystrophy type 2 (MyoDys2) and have been in physical therapy since Dec, 2013 and have just been diagnosed with hyperparathroidism and saw an internet article where two females had that combination and following surgery, one of the two muscle preformance improved. I am new to this Connect site, so would love to connect with others with MyoDys2 only or with both diagnoses.
gailfaith
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I was diagnosed with Myotonic Dystrophy type 2 back in January of 2020. I went from walking with a limp to a cane to having to use a walker in a matter of like a year to two years. I've had physical therapy and I go to my local gym and work a full time job. It hasn't been easy!
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2 Reactions@colleenyoung I know this is a really old post and I am a decade late to the thread, but I am desperatley searching for answers since after 2 decades of problems they finally figured out I have type 2 B myotonic dystrophy. So far my disorder has caused pheocromositomo without carrying the gene for that disorder (left adrenal gland removed), problems with digestive system. leg weakness when standing or doing stairs, heart issues (pace maker installed 2019) gallbladder removed as well as uterus because of benign growths and recently hyperparathyroidism, hypercalemia and vitamin D levels going all over the place one day too low then too high. To make it all worse my 35 year old son was just diagnosed with md2 B and we suspect my 32 year old daughter may have it as well but she doesnt want to get tested