Spinal Cord Stimulator Removal

Posted by heisenberg34 @heisenberg34, Aug 5, 2023

My Medtronics SCS stopped working after about three years. A NEVRO rep talked me into having one of theirs implanted. They had to use an adapter to connect Nevro unit to Medtronics lead. As a result, I cannot have an MRI. Also, the Nevro did not help at all. I would like to have all the SCS stuff removed (or, at least, the NEVRO battery replaced with a Medtronics) so I can have the MRI that my pain specialists seem to want very badly. Anyone out there have this experience this?

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Profile picture for bluridgeranger @bluridgeranger

No problem with our Cigna Insurance. Botched lead install by pain MD. Had it removed by a neurosurgeon (probably overkill, but….)

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I’m a little Leary of pain docs working on and in my back. No overlkill on your part.

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Profile picture for heisenberg34 @heisenberg34

I'm sorry that you had such a bad experience. Sometimes I wonder if it's the device or a poor surgery that did not properly implant the device. Did you have a successful trial? It seems that having a good trial is no indicator of whether the permanent implant will help.
I certainly hope that you can get over the different issues you are currently experiencing.

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yes the trial went perfect but not so much with the permanent one. My original pain doctor who did the trial could not do my permanent because he was not available, so this other surgeon did it. I questioned them about this surgeon and they said he performed a lot of them

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I had the nerve spine stimulator for 5 years. It was never on because it caused me more pain. Last year it was removed and the surgeon literally almost killed me. He tore my spinal cord in 2 places and tore the pain pump he implanted 6 months prior. He told me 3 times he was wipping his hands of me cause he didnt know what was wrong with me. I had 3 large lumps on my spine that looked like baseballs. It took him 1 month to refer me to another surgeon who saved my life. He took 1 look at me and knew i was leaking mass amounts of spinal fluid. He did a emergency surgery and thats when he found the tear in the pain pump too. Last summer was a nightmare for me and now im in very severe back pain all the time. The crazy thing is no doctor is controlling my pain. My body feels like its dying from all the pain im forced to suffer through. My story is very long of what has happened to me. Nobody should get that nerve spine stimulator. Its very dangerous. Could cost you your life like me.

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Profile picture for hazel73 @hazel73

I had the nerve spine stimulator for 5 years. It was never on because it caused me more pain. Last year it was removed and the surgeon literally almost killed me. He tore my spinal cord in 2 places and tore the pain pump he implanted 6 months prior. He told me 3 times he was wipping his hands of me cause he didnt know what was wrong with me. I had 3 large lumps on my spine that looked like baseballs. It took him 1 month to refer me to another surgeon who saved my life. He took 1 look at me and knew i was leaking mass amounts of spinal fluid. He did a emergency surgery and thats when he found the tear in the pain pump too. Last summer was a nightmare for me and now im in very severe back pain all the time. The crazy thing is no doctor is controlling my pain. My body feels like its dying from all the pain im forced to suffer through. My story is very long of what has happened to me. Nobody should get that nerve spine stimulator. Its very dangerous. Could cost you your life like me.

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I am sorry you had to go through all that. No one should have to endure all that. Don’t become bitter. Keep trying to find someone who work with you in order to find some kind of relief. Blessings to you.

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Profile picture for heisenberg34 @heisenberg34

I am sorry you had to go through all that. No one should have to endure all that. Don’t become bitter. Keep trying to find someone who work with you in order to find some kind of relief. Blessings to you.

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Thank you. I know i need to leave this state before i die. So many nurses have told me thr same thing. What has been done to me here is totally wrong. My pain is so bad i just lay down and tears just pour down my cheeks. Im a fighter and a survivor so it is time to move but im going to make sure these surgeons that have caused me more pain are held accountable for their actions. I really dont like knowing other people are out there suffering like me because surgeons and doctors only care about the money. Maybe you will see me one day soon on the news putting these on blast.

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Profile picture for heisenberg34 @heisenberg34

I am sorry you had to go through all that. No one should have to endure all that. Don’t become bitter. Keep trying to find someone who work with you in order to find some kind of relief. Blessings to you.

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I have had a Medtronic SCS for over ten years - with one replacement. It was a great relief early on but have found over the past years I have not used it for both good (improvement) and not so good (increasing other pain). I am now in is situation that looks to be CSS. I am anticipating requiring future MRI's so removal would be necessary. Replacement was not difficult but am curious to know the extent of surgery/recovery from a removal. I have a feeling I may be underestimating the process. Thank you for any input.

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Profile picture for tmwertz @tmwertz

I have had a Medtronic SCS for over ten years - with one replacement. It was a great relief early on but have found over the past years I have not used it for both good (improvement) and not so good (increasing other pain). I am now in is situation that looks to be CSS. I am anticipating requiring future MRI's so removal would be necessary. Replacement was not difficult but am curious to know the extent of surgery/recovery from a removal. I have a feeling I may be underestimating the process. Thank you for any input.

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I had my Medtronic SCS removed in May of 2024. I don't remember it being a big deal. The neurosurgeon who removed it came highly recommended. He really came through. The most difficult part was removing the paddle lead. Apparently he was experienced enough to remove it without incident. Medtronic SCS's are generally MRI compatible, so you should be able to have one without getting the unit removed. I wish you well.

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Profile picture for hazel73 @hazel73

I had the nerve spine stimulator for 5 years. It was never on because it caused me more pain. Last year it was removed and the surgeon literally almost killed me. He tore my spinal cord in 2 places and tore the pain pump he implanted 6 months prior. He told me 3 times he was wipping his hands of me cause he didnt know what was wrong with me. I had 3 large lumps on my spine that looked like baseballs. It took him 1 month to refer me to another surgeon who saved my life. He took 1 look at me and knew i was leaking mass amounts of spinal fluid. He did a emergency surgery and thats when he found the tear in the pain pump too. Last summer was a nightmare for me and now im in very severe back pain all the time. The crazy thing is no doctor is controlling my pain. My body feels like its dying from all the pain im forced to suffer through. My story is very long of what has happened to me. Nobody should get that nerve spine stimulator. Its very dangerous. Could cost you your life like me.

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My husband was in a car wreck back in '99 and fractured his spine in 3 places. Rods and pedicle screws were put in, but they kept coming loose and had to be replaced. At that time, they put in what they told us was a battery to stimulate the bone. At some point, the screws came loose again, and he developed severe back pain and huge basketball-sized squishy lumps on his back. He saw orthopedic surgeons who took samples of the fluid inside and they told him they had no idea what it was. He went on like this for almost 10 years. Finally, a doctor referred him to a Neurosurgeon who took one look and said he needed surgery immediately. The next day he was in surgery and after the surgeon said he couldn't figure out how my husband was still alive. All of the hardware was removed, and the battery was leaking. He had to have bone grafts and tissue grafts. He had MRSA, Sepsis, Septic Shock, and Osteomyelitis. He was hospitalized for 3 weeks as they weren't sure he would make it.
He still has pain and all they were giving him was tramadol. He finally had it out with them and they ordered oxycodone. But even that just takes the edge off.
I would never ever recommend those stimulators. As you said, it can cost you your life.

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Profile picture for tntwo99 @tntwo99

My husband was in a car wreck back in '99 and fractured his spine in 3 places. Rods and pedicle screws were put in, but they kept coming loose and had to be replaced. At that time, they put in what they told us was a battery to stimulate the bone. At some point, the screws came loose again, and he developed severe back pain and huge basketball-sized squishy lumps on his back. He saw orthopedic surgeons who took samples of the fluid inside and they told him they had no idea what it was. He went on like this for almost 10 years. Finally, a doctor referred him to a Neurosurgeon who took one look and said he needed surgery immediately. The next day he was in surgery and after the surgeon said he couldn't figure out how my husband was still alive. All of the hardware was removed, and the battery was leaking. He had to have bone grafts and tissue grafts. He had MRSA, Sepsis, Septic Shock, and Osteomyelitis. He was hospitalized for 3 weeks as they weren't sure he would make it.
He still has pain and all they were giving him was tramadol. He finally had it out with them and they ordered oxycodone. But even that just takes the edge off.
I would never ever recommend those stimulators. As you said, it can cost you your life.

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I certainly hope he is doing better at this point in his life. That is one scary story. It shows how nonempathetic our healthcare "professionals" can be. For your husband to have to go through all that is inexcusable. He is truly blessed to have such a devoted and caring wife. Have a blessed life.

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Profile picture for hazel73 @hazel73

I had the nerve spine stimulator for 5 years. It was never on because it caused me more pain. Last year it was removed and the surgeon literally almost killed me. He tore my spinal cord in 2 places and tore the pain pump he implanted 6 months prior. He told me 3 times he was wipping his hands of me cause he didnt know what was wrong with me. I had 3 large lumps on my spine that looked like baseballs. It took him 1 month to refer me to another surgeon who saved my life. He took 1 look at me and knew i was leaking mass amounts of spinal fluid. He did a emergency surgery and thats when he found the tear in the pain pump too. Last summer was a nightmare for me and now im in very severe back pain all the time. The crazy thing is no doctor is controlling my pain. My body feels like its dying from all the pain im forced to suffer through. My story is very long of what has happened to me. Nobody should get that nerve spine stimulator. Its very dangerous. Could cost you your life like me.

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Oh Dear Hazel,
What a HORROR! I am so devastated for you. I have suffered horrendously thru my SCS, removed 2 weeks ago and count myself lucky I didn't get paralysis....I have had almost 11 months now 'sitting' due increased pain from device. Im sure like me you feel Violated. Your story is absolutely terrible...pain meds dont help me too much but I do understand the horrible sensations of a heightened nervous system. I get terribly frightening flare ups. Have you heard of Joe Dispenza and meditations...its hard to grasp but I researched it thoroughly and its helpful.
I personally am contacting the FDA to report my negative experiences. I do hope somehow you can feel better, find some small joy in life...im sure anyone here is always ready to offer a shoulder if you need. We trust Drs too much. Prayers to you for deep healing. Im so sorry this happened.

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