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Younger than usual with severe osteoporosis
Looking for others with severe osteoporosis at a "youngish" age, for mutual support. I am 53 with severe osteoporosis---t-scores: lumbar -3.7, and femoral neck -3.2. I had a vertebral compression fracture at age 50, but wasn't given a DEXA scan until 2 years later.
Like so many, I did everything right in my adult life--exercise, healthy diet, supplements. It's at least, in part genetic, and partly because I am very petite and thin. My mother is almost 80, was diagnosed with osteoporosis in her 50s, but even now, without any treatment, her t-scores are not as bad as mine.
In May, I had my first Prolia injection. My insurance denied coverage for Evenity. No other options were given to me. The advice I received was, "Don't worry, take suppliments, keep exercising, and don't fall."
I am hopeful, while being realistic. I'm looking to connect with others who understand.
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Thank you so much!
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2 Reactions@flowers62 You're very welcome! Best wishes to you moving forward.
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1 ReactionThanks for sharing your Tscores before 2023. Now I can see that although there wasn’t much change between 2023 to 2025, you were in dangerous numbers before. So Evenity is the medication that gave you a better TScore. Good to hear! Did you have any bad side effects with either Evenity or Tymlos?
@shelldct1 I had no discernible side effects from Evenity. I had some fatigue and joint pain while on Tymlos which gradually increased over the duration to the point where it was negatively impacting my quality of life. However, I also have an autoimmune disorder that flares up, so that may have been a major contributing factor. Those symptoms quickly faded when I came off it.
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