Hi Janell,
Still having tests with Cardiologist. GI doctor confirmed that the edema in my stomach is not from a GI concern. I do have gallstones, so that will have to be handled down the road once I figure out how and what is going on...but all organs that he is concerned with are not causing the edema. Rheumatologist said that I definitely do not have Rheumatoid arthritis and the damage to my hand and inflammation is due to the long term damage that Repatha caused. She said she sees this all of the time with people that are taking injectable cholesterol meds. She told me that it may take years for my body to recover from the damage that Repatha did to me.
I still have intermittent edema in my legs and stomach, inflammation not caused by Rheumatoid arthritis and loss of use of my dominant hand...and both hands are no longer strong and I have issues doing normal things like opening a bottle of water, dropping things, putting on shoes, etc. Texting and typing are a chore now, and I still cannot knit. Three of my fingers on my right dominant hand are the most effected and I cannot make a fist.
I am still in the middle of trying to figure out what is causing the edema.
I wish that I had never started Repatha. It has affected my life in such a horrible way. I feel like it robbed my of my life.
Good luck to you as well.