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Profile picture for baystater101 @baystater101

mbi, good luck with your upcoming surgery. If you're like me, now that you've made the decision to undergo surgery, you want the date to hurry up and get here. This is a good time to practice cultivating patience and equanimity, traits that will serve you well during what can on occasion be a tumultuous post-op period.

Your plan to be in the best shape possible pre-surgeey is a good one; it will definitely help you in the days and weeks post-surgery. I am your age, and almost 4 weeks post-surgery, and am finding my pre-surgery overall fitness level is setving me well during this recovery period.

My understanding is that the septal myectomy is consudered to be a "one-and-done" operation. For someone your (and my) age, I think it is safe to assert that the septum does not grow back.

Having said that, in my self-education over the past year or so I came across a few references suggesting that there are cases where the septum has, in fact, grown back, but if my understanding is correct this is rare, and has happened where the patient was relatively young when their myectomy took place, and/or there were questions whether the first myectomy was procedurally up to snuff. With your surgery set for the Mayo Clinic, you have little to worry about with regard to the experience and technical expertise of your surgical team.

You're right that HCM is not curable, but, like me, you have chosen the treatment plan that directly addresses what for you (and me) is the defining feature of the disease -- the overgrown septum -- so you (and I) should have every confidence that we will remain symptom free after the recovery period.

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Replies to "mbi, good luck with your upcoming surgery. If you're like me, now that you've made the..."

Thank you!!!

Thanks for the info!
Now I need to find out if I have to take my C-Pap machine with me, lol