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My doctors know nothing

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (50)

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Profile picture for zacharycat @zacharycat

The dose you're taking sounded very high to me. Then I realized the med I am on is actually cabozantinib, not capecitabine. I usually go by its brand name, Cabometyx so I confused the medication names.
With this med I take 40 mg once a day. Standard seems to be 60 mg, but many patients find that too hard to maintain. No cycles, just once a day continuously.
Glad that your exercise program is working. I know I like to get out and bike ride if the heat isn't too bad (my heat tolerance is way down this year). Sorry if I created any confusion.

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Replies to "The dose you're taking sounded very high to me. Then I realized the med I am..."

It is all good. My wife created a spreadsheet with all of the meds that take. It is nice to see how short the list is now. But I do keep the original list handy. There is no way to remember all of the names let alone pronounce them all. Have you found anything to help with your side effects? What have you tried?