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Bettyann avatar

Anyone here have Fuch's Dystrophy?

Eye Conditions | Last Active: Sep 1 12:35pm | Replies (106)

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Bettyann: I aam 79 and was Diagnosed with a 13 letter word that I only understood was inherited. A well-known surgeon removed my left cataract and did an implant lens. Follow-up visit were with various Optometrists, Eye Doctors.....By the second visit I said I did not see well, and was a bit concerned. At that time I was told I had Fuchs Dystrophy and a DSEK cornea patch could be tried or a corneal transplant. I lost it...no one had explained this and I also have auto-immune which was on the intake form. Immediately cancelled the right eye. I was told by a wonderful follow-up Dr. that I had a mild case. I use 6 dry eye applications and sometime a gel at night. Cant say I am better, but would like a new Opthamologist. I tried someone in the same practice (a monopoly) and he was wonderful. But the word it out(that I should stay the course with initial Dr. Need to go nearby by nearby is 40 miles away and not always sure they are good. That is why I am following discussions an worried I could get worse. I could use a great specialist in the cornea field near Akron to Cleveland to stay on top of this disease. I see you are doing well and if you have any suggestions. I, too, have tried the Muro myself and it gives temporary clearness. I see you had this in 2011 and certainly hoping you are doing well. nanzzi

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Replies to "Bettyann: I aam 79 and was Diagnosed with a 13 letter word that I only understood..."

Please join Fuchs Friends online to find doctors and learn about patient experiences in your area regarding this condition.
My optometrist (not optomologist) told me a few months ago that I had Fuchs and prescribed eye ointment but he was wrong according to my retina doctor. I simply have thinning of the cornea. Fuchs doctors are hard to find. Cornea transplants are very difficult to perform. Consult an optomology department at a major hospital like Cleveland Clinic or Mayo Clinic for Fuchs confirmation - don't take an optometrists' word for it.