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My doctors know nothing

Neuroendocrine Tumors (NETs) | Last Active: Oct 28 2:43pm | Replies (53)

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Profile picture for zacharycat @zacharycat

Well I feel lightheaded or dizzy fairly often, food tastes different and my blood pressure is higher than it used to be. No nausea or vomiting so far.

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Replies to "Well I feel lightheaded or dizzy fairly often, food tastes different and my blood pressure is..."

Fortunately, I don't have those issues currently. It is hard for me to tell what challenges I had initially from CAPTEM because I was very sick. I didn't like food for about 3 years, lost well over 100 pounds, had ascites and cachexia, and had endured diarrhea and vomiting for a long time. I started exercising after 4 cycles. After about 6 cycles, my doctor lowered my daily capecitabine intake to 2000mg from 2500mg. Most of my lingering issues, some of which were similar to yours, started to subside. How many milligrams are you taking daily? What does a normal cycle look like for you? How much time in between cycles do you take?

I use to feel like that after leaving the Pub when I was young LOL