PMR appears in people with Commonalities, by chance?
Sometimes I wonder if the diseases that pick us are related to our past history or current lifestyles—or just environmental factors? It would make an interesting study. I first noticed this when my late husband had a flare up of polio after a 40-year hiatus. It affected both his legs on the 2nd go round instead of one as was his original experience. Then later, when he developed Parkinson’s, several of his classmates (they kept in touch) fell to it too. Finally in my caregivers’ group as we got to know each other, one lady remarked, all of our husbands are “controllers” in their professions (engineers, scientists, dentists, businessmen)—close detail work. In our PMR world, I think of all the gardeners and athletes among us—physically hard working types who probably push past their limits fairly frequently. Could that be a cause or correlation? Did any of you share my bad habits of drinking wine (frequently) as an adult, or did you drop acid or smoke a lot of pot when you were a teen? What if this is an after-affect? I also smoked straight cigarettes as a young g woman. Not prying…just curious. No need to answer. Obviously not cause and effect, but maybe a close correlation? 🤔
Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
My flare came after a flu and a Covid shot (2 weeks apart). Could be that. But then again, I had a colonoscopy in that time period too. I’m a healthy critter all in all but I believe that was felt as an onslaught to my immune system. Too much in too short a time. Plus I was overworking myself, stressed and tired. Now I’m a year older and my arthritis is kicking in! I tell ya. We’re lucky, though. We’re alive. We have access to medicine that brings immediate relief. We don’t have a fatal disease to contend with. And I don’t know about you but I am mobile. I’m counting my blessings. PS Sorry you’ve been through the wringer! Heck of a thing.
Thank you for your service, first off. And you sure have run into some bad luck! Hope you are resettled somehow. That’s really tough. So now how about making a daily practice of counting your blessings? I think that’s healing. And chase some humor—to laugh at what life throws at you! Sometimes, on good days, I feel certain that life is for loving (and laughing) away.
We are certainly each of us distinctly different—but so much the same, too! I want to congratulate you on getting off prednisone—I’m very nearly there myself!🤞And for accepting what is. Sounds like a healthy attitude.
I just watched Mel Robbins interview Dr. Gabor Maté talk about trauma & our bodies.
It was interesting on Utube. It was recommended by my therapist! I always take things w/a grain of salt but still I found it compelling.
The one “commonality” you are all experiencing may be because, if you are over the age of 60, all doctors prescribe STATINS like they are candy for the aged.
I firmly believe statins directly cause PMR.
You make a lot of sense. I’m sorry for all you’ve been through. I can see you’re a researcher at heart—yet it doesn’t take a scientist, does it, to perceive that our whole population is being poisoned by the air we breathe, the food we eat, the water we drink, the environmental toxins we live with daily. In the end all we can do (besides getting involved with the decisions that govern our world)(and perhaps praying) is to get by as best we can and then turn to help one another. I appreciate your response so much. Thank you!
Diet is tremendously powerful. I’ve simplified my diet a lot to anti-inflammatory choices. Wishes come and go—I just at them away like gnats. Just impressions or memories that have nothing to do with the reality of the present. Everything we do either feeds a habit or helps to weaken a habit.
Hypothyroidism? I forgot about that one! Golly, it’s been 15 20 years for that one. I taken low doses of levothyroxine all these years. I wonder IT does to my body?!
Why thank you for your kindness. Yes I think the PMR has morphed into rheumatoid w me as well. They say it does that…or is it the Lyme. Oy! Yes you remind me that I have much to be grateful for …and I am.! Onward, eh?
I am not on statins - was on no meds at all previous to this but I’ll agree w you that statins are a bad idea.
That's good. It's similar to the work of Bessel van der Kolk. He has a well known book, "The Body Keeps the Score", and there are also Youtube videos about him.