← Return to My doctors know nothing

Discussion
Turkey, Volunteer Mentor avatar

My doctors know nothing

Neuroendocrine Tumors (NETs) | Last Active: Oct 28 2:43pm | Replies (53)

Comment receiving replies
Profile picture for Turkey, Volunteer Mentor @tomrennie

Hey. Good morning to you. I am doing great. I woke up. How are you today? CAPTEM is a combination of two chemo pills, capecitabine and temozolomide. Typically, you take capecitabine for 14 days. On the last 5 days, you add temozolomide. It is a wee bit stronger. Each 14 days is called a cycle. I was on CAPTEM for 13 cycles. It shrunk my main cancer issues on my pancreas and liver over 50% allowing my body to work again. For the past two years, I have just been on capecitabine and everything has remained stable. It most likely won't last forever, but I am going to ride the capecitabine train as long as I can. I am curious. What day and time is it in your part of the world?

Jump to this post


Replies to "Hey. Good morning to you. I am doing great. I woke up. How are you today?..."

I am on capecitabine alone. I will ask my doctor about CAPTEM.
Does CAPTEM have more side effects than capecitabine?

Hi Tommy. Thank you for replying back to me with all that Info about CAPTEM. Now when I got back to the Hospital and see the Doctor I will ask him about the Pills your taking, because I have not heard of anyone that I know who has Cancer taking pills as a treatment so far, but I will talk to him about it that is for sure. my only concern is my age and all my other problems that I've got. Thing like my old hart that needs a Pacemaker to keep it ticking over. plus other things. The problem we face is they give you 1 thing to fix a problem but that pill then give you other problems. So what can one do is the Big question ????? . The day here right now is Tuesday 19/08/25 and the time is 6.15 Am in the morning . Take Care Tommy